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[患有危及生命疾病的儿童应何时开始姑息治疗?]

[When should palliative care for children with life-threatening illnesses begin?].

作者信息

Bergsträsser Eva

机构信息

Pädiatrische Palliative Care, Universitäts-Kinderspital Zürich - Eleonorenstiftung.

出版信息

Praxis (Bern 1994). 2015 Mar 11;104(6):287-91. doi: 10.1024/1661-8157/a001953.

Abstract

Paediatric Palliative Care in Switzerland is still in its infancy. In comparison to palliative care in adults, the knowledge about palliative care in children is limited. To facilitate the decision of when to start palliative care, an instrument for health professionals has been developed. The instrument, called Paediatric Palliative Screening Scale (PaPaS Scale), builds on five domains shedding light on the child's illness: 1) trajectory of disease and impact on daily activities; 2) treatment options and burden of treatment; 3) symptoms, controllability, and problem burden; 4) preferences of patient or parents; and 5) life expectancy. The aims of a reasonably starting palliative care are quality of life and the ability to actively create the rest of life.

摘要

瑞士的儿科姑息治疗仍处于起步阶段。与成人姑息治疗相比,有关儿童姑息治疗的知识有限。为了便于做出何时开始姑息治疗的决策,已为卫生专业人员开发了一种工具。该工具称为儿科姑息筛查量表(PaPaS量表),基于五个领域来阐明儿童的疾病:1)疾病轨迹及其对日常活动的影响;2)治疗选择和治疗负担;3)症状、可控性和问题负担;4)患者或父母的偏好;5)预期寿命。合理开始姑息治疗的目标是提高生活质量以及积极创造余生的能力。

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