Department of Epidemiology and Biostatistics, University of California San Francisco, San Francisco, CA (RAH, CGT); Stanford Cancer Institute, Stanford University, Stanford, CA (DWB); Preventive Medicine, Division of Epidemiology, University of Southern California, Los Angeles, CA (DD); Department of Pathology and Laboratory Medicine (MH) and Institute for Population Health Improvement (KWK), University of California Davis, Sacramento, CA; Department of Health Policy and Management, Rollins School of Public Health, Winship Cancer Institute, Emory University, Atlanta, GA (JL); Oncology and Care Management, WellPoint, Inc., Thousand Oaks, CA (JM); Hooper, Lundy & Bookman, P.C., San Francisco, CA (SKP); Consumer Reports Health, Yonkers, NY (JS); Department of Medicine, Harvard Medical School/Dana Farber Cancer Institute, Boston, MA (DS).
J Natl Cancer Inst. 2015 Mar 11;107(5):djv047. doi: 10.1093/jnci/djv047.
Despite recent increased attention to healthcare performance and the burden of disease from cancer, measures of quality of cancer care are not readily available. In 2013, the California HealthCare Foundation convened an expert workgroup to explore the potential for leveraging data in the California Cancer Registry (CCR), one of the world's largest population-based cancer registries, for measuring and improving the quality of cancer care. The workgroup assessed current registry operations, the value to be gained by linking CCR data with health insurance claims or encounter data and clinical data contained in health system electronic health records, and potential barriers to these linkages. The workgroup concluded that: 1) The CCR mandate should be expanded to include use of its data for quality of cancer care measurement and public reporting; and 2) a system should be developed to support linkage of registry data with both claims data and provider electronic health record data.
尽管最近人们越来越关注医疗保健绩效和癌症带来的疾病负担，但癌症护理质量的衡量标准尚不可用。2013 年，加州医疗基金会召集了一个专家工作组，探讨利用加州癌症登记处（CCR）的数据的潜力，CCR 是世界上最大的基于人群的癌症登记处之一，用于衡量和改善癌症护理质量。工作组评估了当前的登记处运作情况，通过将 CCR 数据与健康保险索赔或医疗记录中的临床数据进行链接可以获得的价值，以及这些链接的潜在障碍。工作组得出结论：1）应扩大 CCR 的任务授权，将其数据用于癌症护理质量衡量和公共报告；2）应开发一个系统，以支持与索赔数据和提供商电子健康记录数据的链接。
