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一项定性研究,从有姑息治疗需求的患者角度探索住院治疗的益处。

A qualitative study exploring the benefits of hospital admissions from the perspectives of patients with palliative care needs.

作者信息

Robinson Jackie, Gott Merryn, Gardiner Clare, Ingleton Christine

机构信息

School of Nursing, Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand Auckland City Hospital, Auckland, New Zealand

School of Nursing, Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand.

出版信息

Palliat Med. 2015 Sep;29(8):703-10. doi: 10.1177/0269216315575841. Epub 2015 Mar 13.

DOI:10.1177/0269216315575841
PMID:25769983
Abstract

BACKGROUND

The acute hospital plays a significant role in caring for people with a life-limiting illness. Most research to date has focused exclusively upon the negative aspects of hospitalisation. Currently, there is little known about the benefits of hospital admissions for patients with palliative care needs.

AIM

The aim of this study was to explore the benefits of hospital admissions, from the perspectives of patients with palliative care needs.

DESIGN

A qualitative study design was adopted. Longitudinal, semi-structured, face-to-face interviews were used to elicit the views of patients admitted to hospital in one large urban acute hospital in New Zealand.

SETTING/PARTICIPANTS: The study sample comprised 14 patients admitted to Auckland City Hospital between July 2013 and March 2014 who met one of the Gold Standard Framework Prognostic Indicators for palliative care need.

RESULTS

Through a process of thematic analysis, four themes were identified from the data: being cared for and feeling safe, receiving care to manage at home, relief for family and 'feeling better and/or getting better'. The benefits of being in hospital were reported to extend beyond treatments received. Most participants reported their preference was to come to hospital even if they had been able to access the care they received in hospital at home.

CONCLUSION

This research contributes to a greater understanding of the benefits associated with hospitalisation for patients with palliative care needs. The findings suggest that such benefits extend beyond the treatment patients receive and challenge current assumptions regarding the role of the acute hospital in palliative care.

摘要

背景

急症医院在照顾患有危及生命疾病的患者方面发挥着重要作用。迄今为止,大多数研究仅关注住院治疗的负面因素。目前,对于有姑息治疗需求的患者住院治疗的益处知之甚少。

目的

本研究旨在从有姑息治疗需求的患者角度探讨住院治疗的益处。

设计

采用定性研究设计。通过纵向、半结构化、面对面访谈来获取新西兰一家大型城市急症医院住院患者的观点。

背景/参与者:研究样本包括2013年7月至2014年3月期间入住奥克兰市医院的14名患者,这些患者符合姑息治疗需求的金标准框架预后指标之一。

结果

通过主题分析过程,从数据中确定了四个主题:得到照顾并感到安全、接受护理以便在家自理、家人得到解脱以及“感觉更好和/或病情好转”。据报告,住院的益处不仅限于所接受的治疗。大多数参与者表示,即使他们能够在家中获得在医院所接受的护理,他们还是更愿意来医院。

结论

本研究有助于更深入地了解有姑息治疗需求的患者住院治疗的益处。研究结果表明,这些益处不仅限于患者所接受的治疗,还对当前关于急症医院在姑息治疗中作用的假设提出了挑战。

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