Kearney T M, Donnelly C, Kelly J M, O'Callaghan E P, Fox C R, Gavin A T
Northern Ireland Cancer Registry, Queens University Belfast, Mulhouse Building, Grosvenor Road, BT12 6DP, UK.
Northern Ireland Cancer Registry, Queens University Belfast, Mulhouse Building, Grosvenor Road, BT12 6DP, UK.
Cancer Epidemiol. 2015 Jun;39(3):401-4. doi: 10.1016/j.canep.2015.02.005. Epub 2015 Mar 12.
It has been suggested that inaccuracies in cancer registries are distorting UK survival statistics. This study compared the Northern Ireland Cancer Registry (NICR) database of living patients, with independent data held by Northern Ireland's General Practitioners (GPs) to compare and validate the recorded diagnoses and dates held by the registry.
All 387 GP practice managers were invited to participate. 100 practices (25.84%) responded. Comparisons were made for 17,102 patients, equivalent to 29.08% of the living patients (58,798) extracted from the NICR between 1993 and 2010.
There were no significant differences (p>0.05) between the responding and nonresponding GP patient profiles for age, marital status or deprivation score. However, the responding GPs included more female patients (p=0.02). NICR data accuracy was high, 0.08% of GP cancer patients (n=15) were not included in registry records and 0.02% (n=2) had a diagnosis date which varied more than 2 weeks from GP records (3 weeks and 5 months). The NICR had recorded two different tumour types and three different tumour statuses (benign vs. malignant) to the GPs.
This comparison demonstrates a high level of accuracy within the NICR and that the survival statistics based on this data can be relied upon.
有人认为癌症登记处的不准确信息正在扭曲英国的生存统计数据。本研究将北爱尔兰癌症登记处（NICR）的在世患者数据库与北爱尔兰全科医生（GP）持有的独立数据进行比较，以对比和验证登记处记录的诊断信息和日期。
邀请了所有387名全科医生诊所经理参与。100家诊所（25.84%）做出了回应。对17102名患者进行了比较，相当于1993年至2010年从NICR提取的在世患者（58798名）的29.08%。
做出回应和未做出回应的全科医生患者在年龄、婚姻状况或贫困得分方面的概况没有显著差异（p>0.05）。然而，做出回应的全科医生纳入的女性患者更多（p=0.02）。NICR数据的准确性很高，0.08%的全科医生诊断的癌症患者（n=15）未被纳入登记处记录，0.02%（n=2）的诊断日期与全科医生记录相差超过2周（3周和5个月）。NICR记录的肿瘤类型和肿瘤状态（良性与恶性）与全科医生记录的有两种不同及三种不同情况。
这种比较表明NICR具有很高的准确性，基于该数据的生存统计数据是可靠的。
