Gavin A, Evans A E
Ulster Med J. 1988 Oct;57(2):129-36.
The Northern Ireland Cancer Registry was evaluated using a 5% sample of all cancers diagnosed histologically in 1983 as the standard for comparison. The overall registration rate was low. Two years following histological diagnosis only 63% of the cancers were registered and 19% of these were notified solely by the Registrar General's office. In a subgroup of patients who were known to have died by the time of the study, only 49% of the cancers were registered while the patient was alive. A further 30% of cases were registered only after death and 21% of cases went unregistered. There was no significant variation in registrations by area, by hospital or by age group. There was a considerable variation in registration rate by disease group. A low level of awareness among hospital doctors about the Northern Ireland Cancer Registry was postulated as a reason for the low levels of registrations received. This was investigated through a postal questionnaire. A response rate of 51% was achieved after two postings. Both the response rate and level of knowledge varied by grade and specialty of the doctor. Only 43% of responders knew of the existence of the cancer registry and only 2% registered patients more often than once a year. Possible methods for improving the system are discussed.
以北爱尔兰癌症登记处对1983年经组织学诊断的所有癌症病例的5%抽样作为比较标准进行评估。总体登记率较低。组织学诊断两年后，仅63%的癌症进行了登记，其中19%仅由总登记官办公室通报。在已知在研究时已经死亡的患者亚组中，仅49%的癌症在患者生前进行了登记。另有30%的病例在患者死亡后才登记，21%的病例未登记。按地区、医院或年龄组划分，登记情况没有显著差异。按疾病组划分，登记率有相当大的差异。据推测，医院医生对北爱尔兰癌症登记处的认识水平较低是登记数量少的一个原因。通过邮寄问卷调查对此进行了调查。两次邮寄后，回复率达到51%。回复率和知识水平因医生的级别和专业而异。只有43%的回复者知道癌症登记处的存在，只有2%的回复者每年登记患者的次数超过一次。文中讨论了改进该系统的可能方法。
