Arrey Agnes Ebotabe, Bilsen Johan, Lacor Patrick, Deschepper Reginald
Department of Public Health, Faculty of Medicine and Pharmacy, Vrije Universiteit Brussel, Brussels, Belgium.
Department of Internal Medicine and Infectious Diseases-AIDS Reference Center, Universitair Ziekenhuis Brussel, Brussels, Belgium.
PLoS One. 2015 Mar 17;10(3):e0119653. doi: 10.1371/journal.pone.0119653. eCollection 2015.
Patients with HIV not only have to deal with the challenges of living with an incurable disease but also with the dilemma of whether or not to disclose their status to their partners, families and friends. This study explores the extent to which sub-Saharan African (SSA) migrant women in Belgium disclose their HIV positive status, reasons for disclosure/non-disclosure and how they deal with HIV disclosure. A qualitative study consisting of interviews with twenty-eight SSA women with HIV/AIDS was conducted. Thematic content analysis was employed to identify themes as they emerged. Our study reveals that these women usually only disclose their status to healthcare professionals because of the treatment and care they need. This selective disclosure is mainly due to the taboo of HIV disease in SSA culture. Stigma, notably self-stigma, greatly impedes HIV disclosure. Techniques to systematically incorporate HIV disclosure into post-test counseling and primary care services are highly recommended.
感染艾滋病毒的患者不仅要应对患不治之症带来的挑战,还要面对是否向伴侣、家人和朋友透露自己病情的两难境地。本研究探讨了比利时的撒哈拉以南非洲(SSA)移民女性在多大程度上披露她们的艾滋病毒阳性状况、披露/不披露的原因以及她们如何应对艾滋病毒披露问题。我们对28名感染艾滋病毒/艾滋病的撒哈拉以南非洲女性进行了访谈,开展了一项定性研究。采用主题内容分析法来识别出现的主题。我们的研究表明,这些女性通常仅因所需的治疗和护理而向医疗保健专业人员披露自己的病情。这种选择性披露主要是由于撒哈拉以南非洲文化中对艾滋病毒疾病的禁忌。耻辱感,尤其是自我耻辱感,极大地阻碍了艾滋病毒的披露。强烈建议采用相关技术,将艾滋病毒披露系统性地纳入检测后咨询和初级保健服务中。