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抗逆转录病毒疗法时代的披露:社会实践的关系分析。

Disclosure in times of ART: a relational analysis of social practices.

出版信息

SAHARA J. 2013 Jul;10 Suppl 1:S1-4. doi: 10.1080/02664763.2012.755317.

DOI:10.1080/02664763.2012.755317
PMID:23844798
Abstract

The reach of HIV counseling and testing has grown rapidly since the 2000s, particularly since 2007 when provider-initiated counseling and testing was implemented alongside voluntary counseling and testing and testing for the prevention of mother-to-child transmission. Nevertheless, we still know little about the attendant practices of disclosing HIV-positive status. Persistently high rates of non-disclosure raise difficult ethical, public health and human rights issues. The articles in this special issue show that disclosure practices in Africa not only follow the public health rationality but are shaped by fears of stigma that favor secrecy. They show how practices of disclosure are embedded in social relationships. More specifically, they present disclosure practices at the intersection of five social spaces: international norms, national legislation and public health recommendations; household and family settings; couples' relationships; parental relationships; and relationships between health workers and PLWHA. The authors describe how people pursue strategies of disclosure in one or more of these social spaces, which sometimes allows them to avoid barriers (for instance when they choose to disclose only partially to certain 'significant others' in the household). One important finding is that counselors often do not support PLWHA to disclose their HIV status. Counselors themselves may be influenced by divergent logics and experience conflicts in values; they may also lack sufficient knowledge and skills to discuss sensitive issues based on rapidly changing medical data and public health recommendations.

摘要

自 21 世纪以来,艾滋病咨询和检测的范围迅速扩大,尤其是自 2007 年以来,在提供自愿咨询和检测以及预防母婴传播检测的同时,还实施了医务人员主动提供咨询和检测。尽管如此,我们对随之而来的披露艾滋病毒阳性状况的做法仍知之甚少。持续较高的未披露率引发了棘手的伦理、公共卫生和人权问题。本期特刊中的文章表明,非洲的披露实践不仅遵循公共卫生合理性,而且还受到对污名的恐惧的影响,而这种恐惧有利于保密。它们表明披露实践是如何嵌入社会关系中的。更具体地说,它们在五个社会空间的交叉点展示了披露实践:国际规范、国家立法和公共卫生建议;家庭和家庭环境;夫妻关系;亲子关系;以及卫生工作者与艾滋病毒感染者和艾滋病患者之间的关系。作者描述了人们如何在这些社会空间中的一个或多个空间中采取披露策略,这有时使他们能够避免障碍(例如,当他们选择仅向家庭中的某些“重要他人”部分披露时)。一个重要的发现是,咨询员通常不支持艾滋病毒感染者和艾滋病患者披露其艾滋病毒状况。咨询员本身可能受到不同逻辑的影响,并在价值观上存在冲突;他们也可能缺乏足够的知识和技能,无法根据快速变化的医学数据和公共卫生建议来讨论敏感问题。

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Disclosure in times of ART: a relational analysis of social practices.抗逆转录病毒疗法时代的披露:社会实践的关系分析。
SAHARA J. 2013 Jul;10 Suppl 1:S1-4. doi: 10.1080/02664763.2012.755317.
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Factors influencing the decision-making of parental HIV disclosure: a socio-ecological approach.
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HIV disclosure to children in low-and middle-income countries: towards effective interventions.向低收入和中等收入国家儿童披露艾滋病毒感染情况:寻求有效的干预措施。
AIDS. 2015 Jun;29 Suppl 1(0 1):S1-5. doi: 10.1097/QAD.0000000000000730.
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"It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.“这是我的秘密”:比利时感染艾滋病毒/艾滋病的撒哈拉以南非洲移民妇女对披露病情的恐惧
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