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测试牧师干预对改善囊性纤维化青少年治疗态度和自我效能的可行性和可接受性:一项试点研究。

Testing the feasibility and acceptability of a chaplaincy intervention to improving treatment attitudes and self-efficacy of adolescents with cystic fibrosis: a pilot study.

作者信息

Cheng Joy, Purcell Hillary N, Dimitriou Sophia M, Grossoehme Daniel H

机构信息

a College of Medicine, Texas A&M Health Science Center , Bryan , Texas , USA.

出版信息

J Health Care Chaplain. 2015;21(2):76-90. doi: 10.1080/08854726.2015.1015365.

DOI:10.1080/08854726.2015.1015365
PMID:25793423
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4609439/
Abstract

Religious factors are known to contribute to treatment adherence in different patient populations, and religious coping has been found to be particularly important to adolescents dealing with chronic diseases. Adherence to prescribed treatments slows disease progression and contributes to desirable outcomes in most patients, and, therefore, adherence-promoting interventions provided by chaplains could be beneficial to various patient populations. The current article describes a pilot study to test the feasibility of a theoretically and empirically based chaplain intervention to promote treatment adherence for adolescents with CF. Cognitive interviews were conducted 24 with adolescents with CF, and content analysis was used to identify themes, which informed revision of the intervention protocol. The authors thought that presenting the methods and results of this pilot study would be helpful for chaplains who want to conduct intervention research. The results indicated that the proposed intervention was acceptable and feasible to deliver in hard copy or an electronic platform.

摘要

众所周知,宗教因素有助于不同患者群体坚持治疗,并且已发现宗教应对方式对于患有慢性病的青少年尤为重要。坚持规定的治疗可减缓疾病进展,并有助于大多数患者获得理想的治疗效果,因此,牧师提供的促进坚持治疗的干预措施可能对各类患者群体有益。本文描述了一项试点研究,以测试基于理论和实证的牧师干预措施对促进囊性纤维化(CF)青少年患者坚持治疗的可行性。对CF青少年患者进行了24次认知访谈,并采用内容分析法确定主题,这些主题为干预方案的修订提供了依据。作者认为,介绍这项试点研究的方法和结果将有助于想要开展干预研究的牧师。结果表明,所提议的干预措施以纸质版或电子平台形式提供都是可以接受且可行的。

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引用本文的文献

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Adolesc Health Med Ther. 2016 Oct 21;7:117-124. doi: 10.2147/AHMT.S95637. eCollection 2016.

本文引用的文献

1
"He Needs to Talk!": A Chaplain's Case Study of Nonreligious Spiritual Care.“他需要倾诉!”:一位牧师关于非宗教性精神关怀的案例研究
J Health Care Chaplain. 2016;22(1):1-16. doi: 10.1080/08854726.2015.1113805.
2
Identifying religious and/or spiritual perspectives of adolescents and young adults receiving blood and marrow transplants: a prospective qualitative study.识别接受血液和骨髓移植的青少年及青年的宗教和/或精神观念:一项前瞻性定性研究。
Biol Blood Marrow Transplant. 2014 Aug;20(8):1242-7. doi: 10.1016/j.bbmt.2014.04.013. Epub 2014 Apr 23.
3
The association between adolescent self-reported physical activity and wellness: the missing piece for youth wellness programs.青少年自报身体活动与健康之间的关联:青年健康计划缺失的一环。
J Adolesc Health. 2014 Aug;55(2):281-6. doi: 10.1016/j.jadohealth.2014.01.021. Epub 2014 Apr 4.
4
Should my provider pray with me? Perspectives of urban adolescents with asthma on addressing religious and spiritual issues in hypothetical clinical settings.我的医疗服务提供者应该和我一起祈祷吗?城市哮喘青少年对在假设临床环境中解决宗教和精神问题的看法。
J Relig Health. 2014 Apr;53(2):604-13. doi: 10.1007/s10943-013-9790-2.
5
Building a new life: a chaplain's theory based case study of chronic illness.构建新生活:基于一位牧师理论的慢性病案例研究
J Health Care Chaplain. 2013;19(3):81-98. doi: 10.1080/08854726.2013.806117.
6
Is adolescents' religious coping with cystic fibrosis associated with the rate of decline in pulmonary function?-A preliminary study.青少年对囊性纤维化的宗教应对方式与肺功能下降速率有关吗?——一项初步研究。
J Health Care Chaplain. 2013;19(1):33-42. doi: 10.1080/08854726.2013.767083.
7
Relationship of adherence determinants and parental spirituality in cystic fibrosis.CF 患者服药依从性决定因素与父母精神性的关系。
Pediatr Pulmonol. 2012 Jun;47(6):558-66. doi: 10.1002/ppul.21614. Epub 2011 Dec 13.
8
Medication adherence and spiritual perspectives among african american older women with hypertension. A qualitative study.非裔美国老年高血压女性的药物依从性与精神观念:一项定性研究
J Gerontol Nurs. 2011 Jun;37(6):34-41. doi: 10.3928/00989134-20100201-02. Epub 2011 Feb 16.
9
Spirituality's role in chronic disease self-management: sanctification of the body in families dealing with cystic fibrosis.灵性在慢性病自我管理中的作用:应对囊性纤维化家庭中身体的神圣化。
J Health Care Chaplain. 2008;15(2):149-58. doi: 10.1080/08854720903163312.
10
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Anxiety Stress Coping. 2010 May;23(3):341-52. doi: 10.1080/10615800903191137.