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参与社交和娱乐日间项目可增强社区融合,并减轻后天性脑损伤患者的家庭负担。

Participation in a social and recreational day programme increases community integration and reduces family burden of persons with acquired brain injury.

作者信息

Gerber Gary J, Gargaro Judith

机构信息

West Park Healthcare Centre , Toronto, ON , Canada.

出版信息

Brain Inj. 2015;29(6):722-9. doi: 10.3109/02699052.2015.1004745. Epub 2015 Mar 20.

DOI:10.3109/02699052.2015.1004745
PMID:25794034
Abstract

PRIMARY OBJECTIVE

To describe and evaluate a new day programme for persons living with an acquired brain injury (ABI), including persons exhibiting challenging behaviours. Activities were designed to reduce participants' social isolation, increase participation in community activities and increase social and leisure skills. It was expected that community integration would increase and challenging behaviours and family burden would decrease for day programme participants.

METHODS AND PROCEDURES

Pre-post convenience sample design. Sixty-one participants and family members completed questionnaires before starting the day programme and after 6-month participation.

MEASURES

Community Integration Questionnaire, Overt Behaviour Scale, Burden Assessment Scale, Goal Attainment Scaling.

RESULTS

Participants had increased community integration (p = 0.000) and decreased family burden (p = 0.006). There was a trend to decreased severity of challenging behaviour. Participants and family members were very satisfied. Results suggest that the programme was effective in reducing participants' social isolation and increasing appropriate interpersonal behaviours.

CONCLUSIONS

Participation increased community integration and reduced burden on family caregivers. ABI day programmes help fill the void left after other rehabilitation services end and provide survivors with opportunities to engage in a variety of activities. Persons living with ABI have need for ongoing social, recreational and life skill coaching services after formal rehabilitation has been completed.

摘要

主要目标

描述并评估一项针对后天性脑损伤(ABI)患者(包括表现出具有挑战性的行为的患者)的新日间项目。活动旨在减少参与者的社会隔离感,增加其对社区活动的参与度,并提高社交和休闲技能。预计日间项目参与者的社区融入度将提高,具有挑战性的行为及家庭负担将减轻。

方法与程序

前后测便利样本设计。61名参与者及其家庭成员在日间项目开始前和参与6个月后完成问卷调查。

测量指标

社区融入问卷、明显行为量表、负担评估量表、目标达成量表。

结果

参与者的社区融入度提高(p = 0.000),家庭负担减轻(p = 0.006)。具有挑战性的行为严重程度有降低趋势。参与者及其家庭成员非常满意。结果表明该项目在减少参与者的社会隔离感和增加适当的人际行为方面有效。

结论

参与该项目提高了社区融入度,减轻了家庭照顾者的负担。ABI日间项目有助于填补其他康复服务结束后留下的空白,并为幸存者提供参与各种活动的机会。ABI患者在完成正式康复后需要持续的社会、娱乐和生活技能指导服务。

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