Pradubwong Suteera, Mongkholthawornchai Siriporn, Keawkhamsean Natda, Patjanasoontorn Niramol, Chowchuen Bowornsilp
J Med Assoc Thai. 2014 Oct;97 Suppl 10:S25-31.
Cleft lips and cleft palates are common congenital anomalies, which affects facial appearance, speech, hearing, teeth alignment and other structures. Craniofacial anomalies and speech disorders are crucial problems in the preschool-aged children (5-6 years old), when they start attending school and become more engaged in the community. This condition, which differentiates them from other students, can lead to teasing or mocking which can cause low-self esteem, an inferiority complex, andfoster bad relationships with friends. Missing class in order to receive treatment and other additional care can affect a student's learning, development and overall-quality of life.
The purpose of this research was to study the quality of life in preschool-aged cleftpalate children and satisfaction with their level of speech.
This was a retrospective, descriptive study. The data were collected by reviewing medical records of patients with cleft lip and cleft palate aged 5-6 years old who underwent operation and treatment with the Tawanchai Center at Srinagarind Hospital. There were 39patients in this study. Data collection was conducted for 5 months (June to October 2013). The research instruments were: (1) General Demographic Questionnaire, (2) Quality of Life Questionnaire with 5 Domains, and (3) the Satisfaction of Speech Questionnaire. The descriptive statistics, percentages and the standard deviation were analyzed in the present study.
The findings revealedfamily information pertaining to CLP treatment and the impact it has on consumption, speech training, hearing test, development, dental treatment, communication skills, participation, referral treatment as well as the quality ofcoordinationfor advanced treatment. The present study revealed that all ofthe aforementioned criteria were met at a high level. Moreover the child's sickness had only a moderate impact on family life. In conclusion, the overall satisfaction was at a very high level.
It was concluded that the collaboration of the Tawanchai Cleft Center and the government, as well as with private and non-governmental organizations was exceptional, particularly in regard to providing proper and continuous treatment for patients with cleft lips and/or cleft palate. The findings reflect a good quality of life in the pre-schooled children with cleft lip and cleft palate that received treatment from the Tawanchai Cleft Center at Srinagarind Hospital. Furthermore, the study showed that the problems associated with the condition, only affected the family's lives at a minimal level.
唇腭裂是常见的先天性畸形,会影响面部外观、言语、听力、牙齿排列及其他结构。颅面畸形和言语障碍是学龄前儿童(5至6岁)面临的关键问题,这个阶段他们开始上学并更多地融入社会。这种情况使他们与其他学生不同,可能导致被取笑或嘲弄,进而引发自卑、自卑情结,并影响与朋友的关系。为接受治疗和其他额外护理而缺课会影响学生的学习、发展及整体生活质量。
本研究旨在探讨学龄前腭裂儿童的生活质量及其对言语水平的满意度。
这是一项回顾性描述性研究。通过查阅在诗里拉吉医院他旺猜中心接受手术和治疗的5至6岁唇腭裂患者的病历收集数据。本研究共有39名患者。数据收集为期5个月(2013年6月至10月)。研究工具包括:(1)一般人口学调查问卷,(2)具有5个领域的生活质量调查问卷,(3)言语满意度调查问卷。本研究分析了描述性统计数据、百分比和标准差。
研究结果揭示了与唇腭裂治疗相关的家庭信息及其对消费、言语训练、听力测试、发育、牙科治疗、沟通技巧、参与、转诊治疗以及高级治疗协调质量的影响。本研究表明上述所有标准均得到高度满足。此外,孩子的疾病对家庭生活的影响仅为中等程度。总之,总体满意度处于非常高的水平。
得出的结论是,他旺猜腭裂中心与政府以及私立和非政府组织的合作非常出色,特别是在为唇裂和/或腭裂患者提供适当和持续治疗方面。研究结果反映了在诗里拉吉医院他旺猜腭裂中心接受治疗的学龄前唇腭裂儿童的良好生活质量。此外,研究表明与该病症相关的问题对家庭生活的影响极小。