Thohinung Usa, Prathanee Benjamas
J Med Assoc Thai. 2016 Aug;99 Suppl 5:S21-8.
Clefts lip and palate (CLP) are among the common orofacial congenital malformations. The treatment needs long-term multidisciplinary team approach. CLP impact both children’s physical and psychological aspects as well as caregivers’ burden. Children with CLP face challenges such as abnormal facial configuration, swallowing disorders, speech and language defects, hearing problems and dental abnormalities. Parents or caregivers play an important role in caring.
To examine caregivers’ role in caring for children with CLP who visited a mobile speech unit in Chiang Kham Hospital, Phayao, Thailand.
This study was qualitative research. Caregivers of the children with CLP, who attended mobile speech camp at Chiang Kham Hospital, Phayao were recruited. Data were collected using Tawanchai Quality of Life, Thai Cleft Quality of Life Questionnaire for children with CLP and in-depth interviews. Data were analyzed using Leonard Method.
The majority (77.80 %) of the CLP children were cared by their mothers. Most caregivers of the children with CLP were depended on agriculture income. Their major concerns for caring the child with cleft lip and palate were a search for: 1) Treatment (70.40%): the most common information that caregivers needed was treatment; 2) Development stimulation (70.20%), especially speech and language therapy; and 3) General care (52.60%): prevention of infection; lower respiratory infection and otitis media, as well as providing effective oral intake and sucking and good nutrition, respectively.
Mothers had a major role for caring the children with CLP. The most concern for caring was searching for treatment, followed by development stimulation, particularly speech services. The information was useful for treatment planning and providing counseling for new caregivers.
唇腭裂是常见的口腔面部先天性畸形之一。其治疗需要长期的多学科团队协作。唇腭裂会对儿童的生理和心理方面产生影响，同时也会增加照顾者的负担。患有唇腭裂的儿童面临着诸如面部形态异常、吞咽障碍、言语和语言缺陷、听力问题以及牙齿异常等挑战。父母或照顾者在护理中起着重要作用。
探讨在泰国帕夭府清堪医院流动言语治疗科就诊的唇腭裂患儿照顾者的护理角色。
本研究为定性研究。招募了在泰国帕夭府清堪医院参加流动言语治疗营的唇腭裂患儿的照顾者。使用Tawanchai生活质量量表、泰国唇腭裂患儿生活质量问卷以及深入访谈收集数据。采用伦纳德方法进行数据分析。
大多数（77.80%）唇腭裂患儿由母亲照顾。大多数唇腭裂患儿的照顾者依赖农业收入。他们在照顾唇腭裂患儿时主要关注的方面包括：1）治疗（70.40%）：照顾者最需要的信息是治疗；2）发育刺激（70.20%），尤其是言语和语言治疗；3）一般护理（52.60%）：预防感染、下呼吸道感染和中耳炎，以及分别提供有效的口腔摄入、吸吮和良好的营养。
母亲在照顾唇腭裂患儿方面发挥着主要作用。照顾时最关注的是寻求治疗，其次是发育刺激，尤其是言语服务。这些信息对于治疗规划和为新的照顾者提供咨询很有用。
