Department of Health and Care Sciences, Faculty of Health and Life Science, Linnaeus University, Växjö, Sweden.
Department of Administration/Primary Care, Region Kronoberg County Council, Växjö, Sweden;
Int J Qual Stud Health Well-being. 2015 Apr 8;10:27147. doi: 10.3402/qhw.v10.27147. eCollection 2015.
Research shows that people with diabetes want their lives to proceed as normally as possible, but some patients experience difficulty in reaching their desired goals with treatment. The learning process is a complex phenomenon interwoven into every facet of life. Patients and healthcare providers often have different perspectives in care which gives different expectations on what the patients need to learn and cope with. The aim of this study, therefore, is to describe the experience of learning to live with diabetes. Interviews were conducted with 12 patients afflicted with type 1 or type 2 diabetes. The interviews were then analysed with reference to the reflective lifeworld research approach. The analysis shows that when the afflicted realize that their bodies undergo changes and that blood sugar levels are not always balanced as earlier in life, they can adjust to their new conditions early. The afflicted must take responsibility for balancing their blood sugar levels and incorporating the illness into their lives. Achieving such goals necessitates knowledge. The search for knowledge and sensitivity to changes are constant requirements for people with diabetes. Learning is driven by the tension caused by the need for and dependence on safe blood sugar control, the fear of losing such control, and the fear of future complications. The most important responsibilities for these patients are aspiring to understand their bodies as lived bodies, ensuring safety and security, and acquiring the knowledge essential to making conscious choices.
研究表明，糖尿病患者希望他们的生活尽可能正常，但一些患者在治疗过程中难以达到他们期望的目标。学习过程是一个复杂的现象，交织在生活的方方面面。患者和医疗保健提供者在护理方面往往有不同的观点，这对患者需要学习和应对的内容有不同的期望。因此，本研究的目的是描述学习与糖尿病共存的体验。对 12 名患有 1 型或 2 型糖尿病的患者进行了访谈。然后，参照反思生活世界研究方法对访谈进行了分析。分析表明，当患者意识到自己的身体发生了变化，血糖水平不再像以前那样平衡时，他们可以尽早适应新的状况。患者必须对平衡血糖水平和将疾病融入生活负责。实现这些目标需要知识。对于糖尿病患者来说，对知识的寻求和对变化的敏感性是持续的要求。学习是由对安全血糖控制的需求和依赖、对失去这种控制的恐惧以及对未来并发症的恐惧所产生的紧张感驱动的。对这些患者来说，最重要的责任是渴望理解他们作为有生命的身体，确保安全，并获得做出有意识选择所需的知识。
