Snoek Frank J
Vrije Universiteit, University Medical Centre, Amsterdam, The Netherlands.
Int J Clin Pract Suppl. 2002 Jul(129):80-4.
Diabetes is a largely self-managed disease with a major psychosocial impact on the lives of patients and their families. Coping effectively with the stresses related to living with and having to manage diabetes on a daily basis is not a simple function of education, i.e., knowing "what is right for you." Clearly, knowledge is a prerequisite, but in no way a guarantee, of making the recommended changes in self-care necessary to achieve optimal glycaemic control. To understand patients' self-care behaviour, we need to take into account various psychological and social factors. Behavioural research findings underscore the role of attitudes and illness beliefs as determinants of patients' health behaviours. For example, misperceptions regarding the seriousness and controllability of diabetes can inhibit active participation of the patient in the treatment. A reluctance to start insulin therapy can be observed in patients with type 2 diabetes who have poor glycaemic control on maximum dosage of oral hypoglycaemic agents. This phenomenon of "psychological insulin resistance" clearly demonstrates how even irrational beliefs can impact health outcomes. Misconceptions about having to start insulin treatment ("now I am seriously ill") are often linked to negative emotions, e.g. anger and fear. Negativistic attitudes and low self-efficacy expectations are not uncommon among people with diabetes, precipitated and maintained by repeated experiences of failure to "master" the diabetes and achieve satisfactory diabetes control. Ultimately, cumulative negative experiences can result in a state of "learned helplessness" or "diabetes burnout." Relational conflicts and lack of social support can also seriously hamper patients' self-care behaviours. In addition, contextual factors such as financial barriers and difficulty with access to health care influence peoples' self-care behaviours. In diabetes care, a bio-psychosocial approach to the patient and his or her coping problems is warranted. Learning to understand the patient's perspective will help health care professionals communicate more effectively and tailor the treatment to the needs of the individual.
糖尿病在很大程度上是一种自我管理的疾病,对患者及其家人的生活有着重大的心理社会影响。有效应对与日常患有和管理糖尿病相关的压力并非简单的教育问题,即知道“什么对你是正确的”。显然,知识是实现最佳血糖控制所需的自我护理方面做出推荐改变的先决条件,但绝不是保证。为了理解患者的自我护理行为,我们需要考虑各种心理和社会因素。行为研究结果强调了态度和疾病信念作为患者健康行为决定因素的作用。例如,对糖尿病严重性和可控性的误解会抑制患者积极参与治疗。在口服降糖药最大剂量治疗下血糖控制不佳的2型糖尿病患者中,可以观察到他们不愿意开始胰岛素治疗。这种“心理胰岛素抵抗”现象清楚地表明,即使是不合理的信念也会影响健康结果。对必须开始胰岛素治疗的误解(“现在我病得很重”)往往与负面情绪有关,如愤怒和恐惧。消极态度和低自我效能期望在糖尿病患者中并不少见,由反复未能“控制”糖尿病并实现满意的血糖控制的经历所引发和维持。最终,累积的负面经历可能导致“习得性无助”或“糖尿病倦怠”状态。关系冲突和缺乏社会支持也会严重阻碍患者的自我护理行为。此外,诸如经济障碍和获得医疗保健困难等背景因素也会影响人们的自我护理行为。在糖尿病护理中,采用生物心理社会方法来处理患者及其应对问题是必要的。学会理解患者的观点将有助于医护人员更有效地沟通,并根据个体需求调整治疗方案。