Fujita Ayaka
Division of Nursing Science Department of Health Sciences, Faculty of Medical Sciences, Kyushu University, Fukuoka, Japan.
Jpn J Nurs Sci. 2016 Jan;13(1):10-9. doi: 10.1111/jjns.12078. Epub 2015 Apr 10.
This mixed methods study describes the post-transplantation daily life of pre-adolescents and adolescents who had undergone living donor liver transplantation and their parents.
Nine parent-child dyads were enrolled and all children were living donor liver transplant recipients. Three participants were pre-adolescents and the six were adolescents. Five of the parents surveyed in this study had been the donors. Members of the parent-child dyads completed the questionnaires and participated in semistructured interviews. An inductive qualitative analysis of the interview data was conducted.
The post-transplantation daily life of the parent-child dyads had four distinct patterns: (i) pre-adolescents who had undergone transplantation during infancy, who had no understanding of the transplant procedure, and whose care was managed by their parent(s) without any problems; (ii) adolescents who were aware that their physical condition had improved after the transplant and who managed and dealt with the situation on their own; (iii) adolescents who were dissatisfied with the transplantation and associated immunosuppression because transplant procedures were perceived as negative or because they could not remember the transplant procedure; and (iv) one participant could not be categorized because their liver function deteriorated post-transplantation and they were registered for re-transplantation. Patterns were identified that characterized the post-transplantation daily life of pre-adolescents/adolescents who underwent liver transplantation, and that of their parents. Further research for post-transplantation parent-child dyads is warranted.
本混合方法研究描述了接受活体供肝移植的青春期前儿童和青少年及其父母移植后的日常生活。
招募了9对亲子二元组，所有儿童均为活体供肝移植受者。其中3名参与者为青春期前儿童，6名是青少年。本研究中接受调查的父母中有5名曾是供体。亲子二元组的成员完成了问卷调查并参与了半结构化访谈。对访谈数据进行了归纳定性分析。
亲子二元组移植后的日常生活有四种不同模式：（i）婴儿期接受移植的青春期前儿童，他们对移植过程没有理解，其护理由父母管理且没有任何问题；（ii）意识到移植后身体状况有所改善且自行管理和应对情况的青少年；（iii）因认为移植过程负面或记不起移植过程而对移植及相关免疫抑制不满意的青少年；（iv）一名参与者无法归类，因为其移植后肝功能恶化且已登记进行再次移植。确定了一些模式，这些模式表征了接受肝移植的青春期前儿童/青少年及其父母移植后的日常生活。有必要对移植后的亲子二元组进行进一步研究。
