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康复计划可以支持患者积极参与,并促进改变进程——来自患有小儿麻痹后遗症的人们参与康复项目的经验。

The rehabilitation plan can support clients' active engagement and facilitate the process of change - experiences from people with late effects of polio participating in a rehabilitation programme.

作者信息

Lexell Eva Månsson, Lexell Jan, Larsson-Lund Maria

机构信息

a Department of Neurology and Rehabilitation Medicine , Skåne University Hospital , Lund-Malmö , Sweden .

b Department of Health Sciences , Lund University , Lund , Sweden , and.

出版信息

Disabil Rehabil. 2016;38(4):329-36. doi: 10.3109/09638288.2015.1038363. Epub 2015 Apr 20.

Abstract

PURPOSE

To explore how the rehabilitation plan influences the rehabilitation process and its outcome in people with late effects of polio participating in an individualised goal-oriented interdisciplinary rehabilitation programme.

METHODS

Four women and two men with late effects of polio were interviewed before rehabilitation, at discharge, and at follow-up. Data were analysed according to the constant comparative method of grounded theory.

FINDINGS

The participants' experiences formed one core category: "The same starting point but different rehabilitation processes". Before rehabilitation, all participants experienced a similar starting point: Naïve understanding of rehabilitation. During rehabilitation, two separate processes followed. Four participants experienced their rehabilitation as being a mutually shared process that led to a process of change. They were actively engaged, using the rehabilitation plan, and working towards goals targeting a broad perspective of daily activities. The remaining two participants experienced their rehabilitation as a staff-directed process, with limited use of the rehabilitation plan, focusing on goals mainly related to body functions and self-care, not leading to any substantial changes.

CONCLUSION

When clients experience that they develop a mutually shared rehabilitation process, based on a rehabilitation plan, they became more engaged in their rehabilitation and gained a better understanding of their participation during the process. Knowledge of the differences in how clients use the rehabilitation plan during the rehabilitation process can support their active engagement during rehabilitation. This, in turn, can promote a more holistic view among clients and professionals during the rehabilitation for people with late effects of polio. Implications for Rehabilitation Clients who experience a rehabilitation that is mutually shared with professionals, have a better understanding of their engagement during the rehabilitation process. When clients and professionals use the rehabilitation plan as a mutual tool, clients become more actively engaged in their rehabilitation process. A structured rehabilitation plan can serve as a map, and support clients' process of change during the rehabilitation process, also after the rehabilitation period is completed.

摘要

目的

探讨康复计划如何影响参与个体化目标导向跨学科康复项目的脊髓灰质炎后遗症患者的康复进程及其结果。

方法

对4名患有脊髓灰质炎后遗症的女性和2名男性在康复前、出院时及随访时进行访谈。根据扎根理论的持续比较法对数据进行分析。

结果

参与者的经历形成了一个核心类别:“起点相同但康复过程不同”。康复前,所有参与者都经历了相似的起点:对康复的朴素理解。康复期间,出现了两个不同的过程。4名参与者将他们的康复体验为一个相互分享的过程,这导致了一个改变的过程。他们积极参与,使用康复计划,并朝着针对广泛日常活动视角的目标努力。其余2名参与者将他们的康复体验为一个由工作人员主导的过程,康复计划使用有限,主要关注与身体功能和自我护理相关的目标,未导致任何实质性改变。

结论

当患者体验到他们基于康复计划形成了一个相互分享的康复过程时,他们会更积极地参与康复,并在过程中对自己的参与有更好的理解。了解患者在康复过程中使用康复计划方式的差异,可以支持他们在康复期间的积极参与。反过来,这可以在脊髓灰质炎后遗症患者的康复过程中促进患者和专业人员形成更全面的观点。对康复的启示 体验到与专业人员相互分享康复过程的患者,对自己在康复过程中的参与有更好的理解。当患者和专业人员将康复计划用作共同工具时,患者会更积极地参与康复过程。一份结构化的康复计划可以作为一张地图,并在康复过程中支持患者的改变过程,康复期结束后也是如此。

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