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人生的积极转折点——患有小儿麻痹症后遗症的人如何体验综合康复计划的影响。

A positive turning point in life--how persons with late effects of polio experience the influence of an interdisciplinary rehabilitation programme.

机构信息

Department of Community Medicine and Rehabilitation, Occupational Therapy , Umeå University, Umeå, Sweden.

出版信息

J Rehabil Med. 2010 Jun;42(6):559-65. doi: 10.2340/16501977-0559.

Abstract

OBJECTIVE

To describe and enhance our understanding of how persons with late effects of polio experience the influence of an interdisciplinary rehabilitation programme.

PARTICIPANTS

Twelve persons with clinically verified late effects of polio who had participated in an individualized, goal-oriented, comprehensive interdisciplinary rehabilitation programme.

METHODS

Qualitative research interviews analysed using the constant comparative method of grounded theory.

RESULTS

The rehabilitation programme was experienced as a turning point in the participants' lives. Before rehabilitation they felt they were on a downward slope without control. Rehabilitation was the start of a process of change whereby they acquired new skills, which, over time, contributed to a different but good life. After approximately a year, they had a sense of control and had accepted life with late effects of polio. They had also established new habits, taken on a changed valued self and could look to the future with confidence.

CONCLUSION

This qualitative study has shown that persons with late effects of polio can benefit from an individualized, goal-oriented, comprehensive interdisciplinary rehabilitation programme and experience positive changes in their management of daily activities and in their view of their late effects of polio, their future and their self.

摘要

目的

描述并增进我们对患有小儿麻痹后遗症的个体如何体验综合跨学科康复计划影响的理解。

参与者

12 名经临床确诊患有小儿麻痹后遗症的个体,他们参加了个体化、目标导向、全面的综合跨学科康复计划。

方法

采用扎根理论的持续比较方法对定性研究访谈进行分析。

结果

康复计划被参与者视为生活的转折点。在康复之前,他们感到自己处于失控的下滑状态。康复是一个改变过程的开始,在此过程中,他们获得了新的技能,随着时间的推移,这些技能有助于过上不同但美好的生活。大约一年后,他们感到有了控制感,接受了小儿麻痹后遗症的生活。他们还养成了新的习惯,对自己有了不同的价值观,并能自信地展望未来。

结论

这项定性研究表明,患有小儿麻痹后遗症的个体可以从个体化、目标导向、全面的综合跨学科康复计划中受益,并在日常活动的管理以及对小儿麻痹后遗症、未来和自我的看法方面经历积极的变化。

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