Gee Perry M, Paterniti Debora A, Ward Deborah, Soederberg Miller Lisa M
Author Affiliations: School of Nursing, Idaho State University, Pocatello, ID (Dr Gee); and Center for Healthcare Policy and Research (Dr Paterniti) and Betty Irene Moore School of Nursing (Dr Ward), University of California, Davis, Sacramento; and Department of Human Ecology, University of California, Davis, CA (Dr Soederberg Miller).
Comput Inform Nurs. 2015 Jun;33(6):229-37. doi: 10.1097/CIN.0000000000000151.
Chronic illness self-management is largely moving from healthcare professionals and into the hands of the patient. One tool that has been promoted to facilitate self-management support of chronic illness by policymakers, health advocates, providers, and consumers is the personal health record. Little is known about how consumers effectively use personal health records for self-management support and for productive patient-provider interactions. The purpose of this study was to learn from chronically ill engaged, experienced, and educated (e-patient) adults how and why they use personal health records for self-management support and productive patient-provider interactions. Eighteen purposively selected consumers were interviewed in two communities. Qualitative description methods were used, and we used a grounded theory approach to analyzing interview data, which was digitally recorded and transcribed verbatim. We identified four major thematic categories that capture the perceptions of the chronically ill using personal health records: (1) patient engagement and health self-management, (2) access to and control over personal health data, (3) promotion of productive communication, and (4) opportunities for training and education. Knowledge gained from the e-patient personal health record users suggest that making improvements to the portal system and providing education to consumers and providers will increase the utility among the experienced users and encourage new users to embrace adoption and use.
慢性病自我管理正逐渐从医疗保健专业人员手中转移到患者手中。政策制定者、健康倡导者、医疗服务提供者和消费者推广的一种促进慢性病自我管理支持的工具是个人健康记录。对于消费者如何有效地使用个人健康记录来获得自我管理支持以及实现高效的医患互动，我们知之甚少。本研究的目的是了解慢性病患者（参与、有经验且受过教育的电子患者）成年人如何以及为何使用个人健康记录来获得自我管理支持和高效的医患互动。在两个社区中对18名经过有目的选择的消费者进行了访谈。采用定性描述方法，我们使用扎根理论方法分析访谈数据，访谈数据进行了数字录音并逐字转录。我们确定了四个主要主题类别，这些类别反映了慢性病患者对使用个人健康记录的看法：（1）患者参与和健康自我管理，（2）获取和控制个人健康数据，（3）促进高效沟通，（4）培训和教育机会。从电子患者个人健康记录用户那里获得的知识表明，改进门户系统并向消费者和医疗服务提供者提供教育将提高有经验用户的效用，并鼓励新用户接受并使用。
