Dean Jennifer, Fenton Nancy E, Shannon Sara, Elliott Susan J, Clarke Ann
University of Waterloo, Waterloo, ON, Canada.
McMaster University, Hamilton, ON, Canada.
Health Soc Care Community. 2016 Sep;24(5):e43-52. doi: 10.1111/hsc.12244. Epub 2015 May 4.
In 2006, 3 years after the tragic death of 13-year-old Sabrina Shannon, the Province of Ontario (Canada) passed Sabrina's Law ushering in a new era of focus and concern for severe food allergic children at risk of anaphylaxis. Questions were raised at the time regarding the potential of doing more harm than good with the new legislation. This paper reports the experiences of health-related stigma among food allergic children at risk of anaphylaxis who were required to disclose their health status under this new legislation. In 2008, in-depth interviews were conducted with 20 children and youth and their parents in order to explore the experiences living with a severe food allergy. This particular study explores their experiences of felt and enacted stigma in the school setting as a result of the disclosure process. Interviews were tape recorded with permission and transcribed for subsequent thematic analysis using NVIVO, a qualitative analysis software package. Results indicate that participants were stigmatised as a result of protective school policies under the law, and that created tension between their physical safety and social well-being. Sabrina's Law also led to a cultural shift in awareness of food allergies that resulted in some participants normalising their health status, offering promising directions for the future.
2006年，13岁的萨布丽娜·香农不幸离世三年后，加拿大安大略省通过了《萨布丽娜法案》，开启了一个关注和关心有过敏反应风险的严重食物过敏儿童的新时代。当时有人质疑这项新立法是否会弊大于利。本文报告了在这项新立法要求下必须披露健康状况的、有过敏反应风险的食物过敏儿童所经历的与健康相关的污名化情况。2008年，对20名儿童、青少年及其父母进行了深入访谈，以探究严重食物过敏患者的生活经历。这项特别研究探讨了他们在披露过程后在学校环境中感受到的和实际遭遇的污名化经历。访谈经许可进行了录音，并转录下来以便使用定性分析软件包NVIVO进行后续的主题分析。结果表明，参与者因法律规定的学校保护政策而受到污名化，这在他们的身体安全和社会福祉之间造成了紧张关系。《萨布丽娜法案》还导致了对食物过敏认识的文化转变，使得一些参与者将自己的健康状况正常化，为未来提供了有希望的方向。
