Oh Juyeon, An Ji Won, Oh Ki-Wook, Oh Seong-Il, Kim Jung A, Kim Seung Hyun, Lee Jeong Seop
College of Nursing, Hanyang University; Hanyang Cell Therapy Center, Hanyang University Seoul Hospital, Seoul, Korea.
Department of Nursing, Far East University, Eumseong, Korea.
J Korean Acad Nurs. 2015 Apr;45(2):202-10. doi: 10.4040/jkan.2015.45.2.202.
The purpose of this study was to describe depression, caregiving burden and the correlation of the two variables in the families of patients with amyotrophic lateral sclerosis (ALS) and to clarify factors predicting caregiving burden.
A descriptive and cross-sectional study was conducted with 139 family members who provided care to patients with ALS. The characteristics of patients and families, Korean-Beck Depression Inventory (K-BDI), Korean version of Zarit Burden Interview (K-ZBI) and Korean-Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (K-ALSFRS-R) were used as study measures.
The mean score for K-BDI was 19.39 out of 63 suggesting sub-clinical depression and 38.2% of the family members exhibited depression. The mean score for K-ZBI was 66.03 out of 88. The predictors for K-ZBI were K-BDI, age of family member, length of time spent per day in caring, relationship to patient and K-ALSFRS-R.
The results of this study suggest that levels of depression and caregiving burden are high among family members caring for patients with ALS. As depression is associated with caregiving burden, screening and emotional supports should be provided to reduce the burden of care for these family. Support programs to alleviate the care burden are also needed, considering family demographics, time per day in caring giving and K-ALSFRS-R.
本研究旨在描述肌萎缩侧索硬化症（ALS）患者家庭中的抑郁状况、照顾负担以及这两个变量之间的相关性，并阐明预测照顾负担的因素。
对139名照顾ALS患者的家庭成员进行了一项描述性横断面研究。研究指标包括患者及家庭的特征、韩国版贝克抑郁量表（K-BDI）、韩国版 Zarit 照顾负担访谈量表（K-ZBI）以及韩国版肌萎缩侧索硬化症功能评定量表修订版（K-ALSFRS-R）。
K-BDI的平均得分为63分中的19.39分，提示存在亚临床抑郁，38.2%的家庭成员表现出抑郁。K-ZBI的平均得分为88分中的66.03分。K-ZBI的预测因素包括K-BDI、家庭成员年龄、每天照顾时间、与患者的关系以及K-ALSFRS-R。
本研究结果表明，照顾ALS患者的家庭成员中抑郁水平和照顾负担较高。由于抑郁与照顾负担相关，应提供筛查和情感支持以减轻这些家庭的照顾负担。考虑到家庭人口统计学特征、每天照顾时间和K-ALSFRS-R，还需要支持项目来减轻照顾负担。
