Abba Katharine, Horton Siobhan, Lloyd-Williams Mari
Academic Palliative and Supportive Care Studies Group, UK.
BMJ Support Palliat Care. 2015 Apr;5 Suppl 1:A25. doi: 10.1136/bmjspcare-2015-000906.80.
Societal barriers to open discussion of personal feelings and preferences relating to death may hinder planning for end of life and supporting people who are dying or bereaved.
To explore views about talking about death, dying and loss.
Semi-structured interviews were conducted with 31 people; age range 30 to 83 years.
Making wills and communicating end of life wishes were considered very important; mostly for the sake of the family left behind. Participants also valued confidence to discuss other people's end of life wishes and support them appropriately if they were dying or bereaved. Many participants were very comfortable talking about their own death. Identified barrier to talking about end of life wishes included not wanting to upset others; others not listening; not being about to find an appropriate moment; not knowing enough about the options available; and fear of death, especially of the unknown. Financial costs were seen as a barrier to making a will. Participants talked of the importance of raising awareness of what death and dying involves; what end of life options available; and the importance of communication. Information on the process of normal grieving and how to support somebody who has been bereaved were also suggested.
Being able to talk about end of life wishes and know how to support people who are dying or bereaved are important to many people, and they would welcome interventions to facilitate this at a societal level.
社会对于公开讨论与死亡相关的个人感受和偏好存在障碍,这可能会阻碍临终规划以及对临终者或丧亲者的支持。
探讨关于谈论死亡、临终和丧亲的观点。
对31人进行了半结构化访谈;年龄范围在30至83岁之间。
立遗嘱和传达临终愿望被认为非常重要;主要是为了留给身后的家人。参与者还重视有信心讨论他人的临终愿望,并在他人临终或丧亲时给予适当支持。许多参与者对谈论自己的死亡感到非常自在。确定的谈论临终愿望的障碍包括不想让他人难过;他人不听;找不到合适的时机;对可用选项了解不足;以及对死亡的恐惧,尤其是对未知的恐惧。经济成本被视为立遗嘱的障碍。参与者谈到了提高对死亡和临终所涉及内容的认识、了解可用的临终选项以及沟通的重要性。还建议提供关于正常悲伤过程以及如何支持丧亲者的信息。
能够谈论临终愿望并知道如何支持临终者或丧亲者对许多人来说很重要,他们欢迎在社会层面进行干预以促进这一点。