Abba Katharine, Horton Siobhan, Zammit Rachel, Lloyd-Williams Mari
Academic Palliative and Supportive Care Studies Group (APSCSG) University of Liverpool, UK.
BMJ Support Palliat Care. 2015 Apr;5 Suppl 1:A24. doi: 10.1136/bmjspcare-2015-000906.77.
Death is universal. Only 37% of adults have a will and 48% have stated their wishes regarding cremation or burial.(1) Planning and communication can help prevent some of the distress associated with dying and bereavement.
To evaluate an intervention to encourage people to plan for the end of their life and to communicate their wishes to those closest to them.
Two interventions were delivered via community groups: 'Awareness' presentations aimed to raise awareness of benefits of preparing and talking about end of life issues. 'How to' workshops aimed to give people confidence and tools to open relevant conversations. To evaluate their impact, we conducted a 3-stage questionnaire survey; administered before, immediate after and 3 months after events.
At baseline (n = 498; 76% female) 76% had previously discussed end of life care or wishes after death. Most were comfortable talking about these subjects, giving a mean score of 8.28/10. At follow-up (n = 133); 60% indicated they had made changes following the event; 43% had talked about their own end of life wishes, 9% for the first time; and 39% reported making other changes. The change in the proportion of people who had ever talked about their own end of life wishes was statistically significant (p = 0.033).
Well designed community events can improve planning and communication of end of life preferences among general population.
Dying Matters Survey http://www.comres.co.uk/polls/Dying_Matters_Public_April12.pdf.
死亡是普遍存在的。只有37%的成年人立有遗嘱，48%的人表明了他们对火葬或土葬的意愿。（1）规划和沟通有助于预防一些与死亡和丧亲之痛相关的痛苦。
评估一项干预措施，以鼓励人们为生命的终结做好规划，并将他们的意愿传达给最亲近的人。
通过社区团体开展了两项干预措施：“意识”讲座旨在提高人们对准备和谈论生命终结问题的益处的认识。“如何做”工作坊旨在让人们有信心并掌握开启相关对话的工具。为了评估其影响，我们进行了一个三阶段的问卷调查；在活动前、活动刚结束后以及活动后3个月进行。
在基线时（n = 498；76%为女性），76%的人此前曾讨论过临终护理或死后愿望。大多数人对谈论这些话题感到自在，平均得分为8.28/10。在随访时（n = 133）；60%的人表示他们在活动后做出了改变；43%的人谈论了自己的临终愿望，其中9%是首次谈论；39%的人报告做出了其他改变。曾经谈论过自己临终愿望的人的比例变化具有统计学意义（p = 0.033）。
精心设计的社区活动可以改善普通人群对生命终结偏好的规划和沟通。
《死亡重要事项调查》http://www.comres.co.uk/polls/Dying_Matters_Public_April12.pdf 。
