兄弟姐妹对与患有唐氏综合征或自闭症谱系障碍的年轻人共同生活的看法：一项综合综述。
Sibling perceptions of living with a young person with Down syndrome or autism spectrum disorder: an integrated review.
作者信息
Mandleco Barbara, Webb Ann Elisabeth Mason
机构信息
College of Nursing, Brigham Young University, Provo, Utah, USA.
Health Rejuvenation Institute, Spanish Fork, Utah, USA.
出版信息
J Spec Pediatr Nurs. 2015 Jul;20(3):138-56. doi: 10.1111/jspn.12117. Epub 2015 May 12.
PURPOSE
This integrative review synthesized current information from 28 research articles meeting inclusion criteria that examined sibling experiences when living with a young person with Down syndrome or autism spectrum disorder.
CONCLUSIONS
Five themes emerged related to sibling experiences: their knowledge of the condition, relationships with others, perceptions of the condition, emotional reactions to the situation, and behavioral/personality outcomes.
PRACTICE IMPLICATIONS
Nurses caring for families raising youth with Down syndrome or autism spectrum disorder can enhance sibling development by providing individual interventions reflecting siblings' perceptions of the experience.
目的
本综合综述综合了28篇符合纳入标准的研究文章中的当前信息，这些文章研究了与患有唐氏综合征或自闭症谱系障碍的年轻人一起生活时兄弟姐妹的经历。
结论
出现了与兄弟姐妹经历相关的五个主题：他们对病情的了解、与他人的关系、对病情的认知、对这种情况的情绪反应以及行为/性格结果。
实践意义
照顾抚养患有唐氏综合征或自闭症谱系障碍青少年家庭的护士可以通过提供反映兄弟姐妹对经历认知的个性化干预措施来促进兄弟姐妹的发展。
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