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唐氏综合征患儿的同胞:综合评价。

Siblings of children with Down syndrome: an integrative review.

机构信息

College of Nursing, Kyungpook National University, Daegu, South Korea.

出版信息

MCN Am J Matern Child Nurs. 2013 Mar;38(2):72-8. doi: 10.1097/NMC.0b013e31826bad8e.

Abstract

The purpose of this review was to understand the experience of siblings living with a child with Down syndrome (DS) and to identify factors influencing siblings' adaptation. There were both positive and negative consequences associated with being the sibling of a child with DS. Various factors affected siblings' adaptation, but many of these factors were modifiable. An understanding of the modifiable factors can help healthcare providers provide better care and facilitate the development of targeted family/community level interventions. Healthcare providers can also recognize siblings at increased risk for experiencing difficulties adapting and can initiate preventive strategies by understanding nonmodifiable factors.

摘要

本次综述旨在了解与唐氏综合征(Down syndrome,DS)患儿共同生活的患儿同胞的体验,并确定影响其适应能力的因素。患儿同胞会受到积极和消极两方面的影响。许多因素会影响患儿同胞的适应情况,但其中许多因素是可以改变的。了解这些可改变因素有助于医疗保健提供者提供更好的护理,并促进有针对性的家庭/社区干预措施的发展。医疗保健提供者还可以通过了解不可改变的因素,识别出适应困难风险较高的患儿同胞,并采取预防策略。

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