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手足之情:与患有广泛性发育障碍或智力障碍的孩子一同成长。

The sibling experience: growing up with a child who has pervasive developmental disorder or mental retardation.

作者信息

Schuntermann Peter

机构信息

Department of Psychiatry, Harvard Medical School, and Developmental Medicine Center, Children's Hospital Boston, MA 02115, USA.

出版信息

Harv Rev Psychiatry. 2007 May-Jun;15(3):93-108. doi: 10.1080/10673220701432188.

Abstract

Parents raising a child with significant developmental challenges are profoundly aware of the often sustained impact of that child's special needs upon their other children. Supported by recent research on siblings of developmentally challenged children, clinicians are advocating family-based interventions that take into account the needs of siblings. This article reviews the experience of siblings who live with brothers or sisters diagnosed with pervasive developmental disorder or mental retardation. Contributions from research on typical siblings are drawn upon when appropriate. Six domains of the sibling experience are identified. These domains explore relational shifts within sibling relationships and through the expectable differential parental treatment of each child. Shifts considered in this review include the interrelationships with the extended family, peers, and friendships, all of which contribute to shaping the meaning that siblings give to living with developmentally challenged brothers or sisters across time.

摘要

抚养有严重发育障碍孩子的父母深切意识到,那个孩子的特殊需求对他们其他孩子往往会产生持续影响。在近期针对发育障碍儿童兄弟姐妹的研究支持下,临床医生倡导开展考虑到兄弟姐妹需求的家庭干预措施。本文回顾了与被诊断患有广泛性发育障碍或智力障碍的兄弟姐妹一起生活的兄弟姐妹的经历。在适当的时候会借鉴对正常兄弟姐妹研究的成果。确定了兄弟姐妹经历的六个领域。这些领域探讨了兄弟姐妹关系内部以及通过父母对每个孩子可预期的差别对待而产生的关系变化。本综述中考虑的变化包括与大家庭、同龄人及友谊的相互关系,所有这些都有助于随着时间的推移塑造兄弟姐妹对于与发育障碍的兄弟姐妹一起生活所赋予的意义。

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