Nash Woods, Mixer Sandra J, McArthur Polly M, Mendola Annette
The University of Tennessee, USA.
Nurs Ethics. 2016 Nov;23(7):743-753. doi: 10.1177/0969733015583926. Epub 2015 May 14.
Homeless persons in the United States have disproportionately high rates of illness, injury, and mortality and tend to believe that the quality of their end-of-life care will be poor. No studies were found as to whether nurses or nursing students require moral courage to help homeless persons or members of any other demographic complete advance directives.
We hypothesized that baccalaureate nursing students require moral courage to help homeless persons complete advance directives. Moral courage was defined as a trait of a person or an action that overcomes fears or other challenges to achieve something of great moral worth.
The hypothesis was investigated through a qualitative descriptive study. Aside from the pre-selection of a single variable to study (i.e. moral courage), our investigation was a naturalistic inquiry with narrative hues insofar as it attended to specific words and phrases in the data that were associated with that variable.
A total of 15 baccalaureate nursing students at a public university in the United States responded to questionnaires that sought to elicit fears and other challenges that they both expected to experience and actually experienced while helping homeless persons complete advance directives at a local, non-profit service agency.
The study was approved by the Internal Review Board of the authors' university, and each participant signed an informed consent form, which stated that the study involved no reasonably foreseeable risks and that participation was voluntary.
Before meeting with homeless persons, participants reported that they expected to experience two fears and a challenge: fear of behaving in ways that a homeless person would deem inappropriate, fear of discussing a homeless person's dying and death, and the challenge of adequately conveying the advance directive's meaning and accurately recording a homeless person's end-of-life wishes. In contrast, after their meetings with homeless persons, relatively few participants reported having encountered those obstacles. So, while participants required moral courage to assist homeless persons with advance directives, they required greater moral courage as they anticipated their meetings than during those meetings.
Our study breaks new ground at the intersection of nursing, moral courage, and advance directives. It might also have important implications for how to improve the training that US nursing students receive before they provide this service.
Our results cannot be generalized, but portions of our approach are likely to be transferable to similar social contexts. For example, because homeless persons are misunderstood and marginalized throughout the United States, our design for training nursing students to provide this service is also likely to be useful across the United States. Internationally, however, it is not yet known whether our participants' fears and the challenge they faced are also experienced by those who assist homeless persons or members of other vulnerable populations in documenting healthcare wishes.
美国无家可归者的疾病、受伤和死亡率极高,且往往认为他们临终关怀的质量会很差。目前尚未发现关于护士或护理专业学生是否需要道德勇气来帮助无家可归者或其他任何人群完成预立医疗指示的研究。
我们假设护理专业本科学生需要道德勇气来帮助无家可归者完成预立医疗指示。道德勇气被定义为一个人所具有的特质或一种行为,它能克服恐惧或其他挑战以实现具有重大道德价值的目标。
通过定性描述性研究对该假设进行调查。除了预先选择一个单一变量(即道德勇气)进行研究外,我们的调查是一种带有叙事色彩的自然主义探究,因为它关注数据中与该变量相关的特定词汇和短语。
美国一所公立大学的15名护理专业本科学生对问卷做出了回应,这些问卷旨在引出他们在当地一家非营利服务机构帮助无家可归者完成预立医疗指示时预期会经历以及实际经历的恐惧和其他挑战。
该研究获得了作者所在大学内部审查委员会的批准,每位参与者都签署了知情同意书,其中声明该研究不存在合理可预见的风险,且参与是自愿的。
在与无家可归者会面之前,参与者报告称他们预期会经历两种恐惧和一项挑战:担心行为方式被无家可归者认为不适当,担心讨论无家可归者的濒死和死亡情况,以及充分传达预立医疗指示的含义并准确记录无家可归者临终愿望的挑战。相比之下,在与无家可归者会面之后,相对较少的参与者报告遇到过这些障碍。所以,虽然参与者在协助无家可归者完成预立医疗指示时需要道德勇气,但他们在预期会面时比在实际会面时需要更大的道德勇气。
我们的研究在护理、道德勇气和预立医疗指示的交叉领域开辟了新天地。它可能对如何改进美国护理专业学生在提供这项服务之前所接受的培训也具有重要意义。
我们的结果无法进行推广,但我们方法的某些部分可能适用于类似的社会背景。例如,由于在美国无家可归者被误解和边缘化,我们培训护理专业学生提供这项服务的设计在美国各地可能也会有用。然而,在国际上,尚不清楚协助无家可归者或其他弱势群体记录医疗保健愿望的人是否也会经历我们参与者所面临的恐惧和挑战。