加拿大患有关节炎儿童的休闲活动参与情况：来自全国代表性样本的结果。
Participation in Leisure Activities among Canadian Children with Arthritis: Results from a National Representative Sample.
作者信息
Cavallo Sabrina, Majnemer Annette, Mazer Barbara, Chilingaryan Gevorg, Ehrmann Feldman Debbie
机构信息
From the Département de Médecine Sociale et Préventive, École de Santé Publique, and the École de Réadaptation, Faculté de Médecine, Université de Montréal; The Montreal Children's Hospital; McGill University Health Center; The Institut de Recherche en Santé Publique Université de Montréal; The Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal; The School of Physical and Occupational Therapy, McGill University; The Public Health Department, Montréal; The Jewish Rehabilitation Hospital, Laval, Québec, Canada.S. Cavallo, MSc, BSc(OT), Département de Médecine Sociale et Préventive, École de Santé Publique, Université de Montréal, Montreal Children's Hospital, McGill University Health Center, Institut de Recherche en Santé Publique Université de Montréal, and Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, and the Institut de Réadaptation de Montréal; A. Majnemer, PhD, OT, School of Physical and Occupational Therapy, McGill University, Montreal Children's Hospital, and McGill University Health Center; B. Mazer, PhD, BSc(OT), Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal, School of Physical and Occupational Therapy, McGill University, and Jewish Rehabilitation Hospital; G. Chilingaryan, DMD, MPH, Département de Médecine Sociale et Préventive, École de Santé Publique, Université de Montréal, and Jewish Rehabilitation Hospital; D. Ehrmann Feldman, PhD, PT, Département de Médecine Sociale et Préventive, École de Santé Publique, Université de Montréal, Institut de Recherche en Santé Publique Université de Montréal, Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal, École de Réadaptation, Faculté de Médecine, Université de Montréal, Montreal Children's Hospital, and t
出版信息
J Rheumatol. 2015 Jun;42(6):1002-10. doi: 10.3899/jrheum.131377. Epub 2015 May 15.
OBJECTIVE
To describe the level of participation in leisure activities among children and youth with arthritis, as well as to identify the sociodemographic (age, sex, family income), disease-related (functional limitations, disease duration, pain, medication use, child's need for assistance), and contextual factors (use of rehabilitation services, proximity of local recreation facilities, cost of activities) that may be associated.
METHODS
Data from the Participation and Activity Limitation Survey (PALS) 2006, a Canadian postcensus survey, was analyzed. Bivariate and multivariable linear regression analyses were applied to examine the associations between the sample's level of participation in leisure activities, and sociodemographic, disease-related, and contextual characteristics.
RESULTS
In Canada in 2006, an estimated 4350 children ranging in age from 5 to 14 years were living with arthritis. Fifty-six percent of parents reported that arthritis restricted their child's participation in leisure activities. Bivariate analysis showed that the availability of local recreational facilities, the affordability of activities, and the child not requiring any assistance were all associated (modified Bonferroni correction α < 0.005) with greater participation in various types of leisure activities. Multiple linear regressions showed that higher family income (β 0.47, 95% CI 0.09, 0.85) and greater perceived pain (β 0.59, 95% CI 0.07, 1.10) were positively associated with involvement in informal leisure.
CONCLUSION
Our findings underline the importance of considering contextual factors in developing treatment plans aimed at improving participation in leisure activities among children with arthritis. Future longitudinal studies targeting children living with arthritis could provide pertinent information on participation over fluctuations in disease status.
目的
描述患有关节炎的儿童和青少年参与休闲活动的程度，并确定可能与之相关的社会人口统计学因素（年龄、性别、家庭收入）、疾病相关因素（功能限制、疾病持续时间、疼痛、药物使用、儿童对援助的需求）以及背景因素（康复服务的使用、当地娱乐设施的 proximity、活动成本）。
方法
分析了来自2006年参与和活动限制调查（PALS）的数据，这是一项加拿大人口普查后的调查。应用双变量和多变量线性回归分析来检验样本参与休闲活动的程度与社会人口统计学、疾病相关和背景特征之间的关联。
结果
2006年在加拿大，估计有4350名年龄在5至14岁之间的儿童患有关节炎。56%的家长报告称关节炎限制了孩子参与休闲活动。双变量分析表明，当地娱乐设施的可用性、活动的可承受性以及孩子不需要任何援助都与更多地参与各类休闲活动相关（修正的邦费罗尼校正α<0.005）。多元线性回归显示，较高的家庭收入（β 0.47，95%置信区间0.09，0.85）和更大的感知疼痛（β 0.59，95%置信区间0.07，1.10）与参与非正式休闲活动呈正相关。
结论
我们的研究结果强调了在制定旨在提高患有关节炎儿童参与休闲活动的治疗计划时考虑背景因素的重要性。未来针对患有关节炎儿童的纵向研究可以提供有关疾病状态波动时参与情况的相关信息。
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