Law Mary, King Gillian, King Susanne, Kertoy Marilyn, Hurley Patricia, Rosenbaum Peter, Young Nancy, Hanna Steven
CanChild Centre for Childhood Disability Research, Hamilton, Ontario, Canada.
Dev Med Child Neurol. 2006 May;48(5):337-42. doi: 10.1017/S0012162206000740.
Children with physical disabilities are at increased risk of limitations to participation in everyday activities. This study describes research examining the participation of children in day-to-day formal and informal activities (excluding mandated academic schooling). Using the Children's Assessment of Participation and Enjoyment (CAPE) measure, data on participation patterns were collected from 427 children (229 males, 198 females; mean age 10 y [SD 2 y 4 mo]; range 6-14 y) with physical limitations and from their families. The primary types of physical disability in the sample included cerebral palsy, spina bifida, acquired brain injury, and musculoskeletal limitations. Findings indicate a broad range of diversity and intensity of participation, with proportionately greater involvement in informal rather than formal activities. Significant differences in participation and enjoyment were found between males and females, and for children more than 12 years of age. Children's participation was less diverse in families reporting lower income, single-parent status, and lower respondent parent education. These findings provide a foundation for an improved understanding of the participation of children with physical disabilities, which can assist families and service providers in planning activities that fit with their child's preferences and ensure active participation.
身体残疾儿童参与日常活动受到限制的风险更高。本研究描述了一项关于儿童参与日常正式和非正式活动（不包括法定学业教育）的调查。使用儿童参与和享受评估量表（CAPE），收集了427名有身体限制的儿童及其家庭关于参与模式的数据。样本中主要的身体残疾类型包括脑瘫、脊柱裂、后天性脑损伤和肌肉骨骼限制。研究结果表明参与的多样性和强度范围很广，参与非正式活动的比例高于正式活动。在男性和女性之间以及12岁以上儿童的参与和享受方面发现了显著差异。在收入较低、单亲家庭以及家长受教育程度较低的家庭中，儿童的参与活动种类较少。这些研究结果为更好地理解身体残疾儿童的参与情况奠定了基础，有助于家庭和服务提供者规划符合孩子喜好的活动并确保其积极参与。
