Roland Kaitlyn P, Chappell Neena L
University of Victoria, Canada.
Dementia (London). 2017 Feb;16(2):178-191. doi: 10.1177/1471301215586287. Epub 2016 Jul 27.
Caregivers of persons living with dementia (PWD) taking cholinesterase inhibitors, who care 3 + h over three days/week, were interviewed. This study uses thematic content analysis to compare responses to the open-ended question " What do you believe getting involved in activities outside the home means for someone with dementia?" in spouse ( n = 613) and adult-children ( n = 260) caregivers, and across mild ( n = 314) and moderate-severe stages ( n = 280). For adult-children caregivers, activity participation promotes independence in their parents. Spouses describe activity in the context of their relationship with the PWD, and the experience is framed around their continued social roles as a couple. Mild-stage caregivers report the difficulty and negative outcomes (e.g. frustration, stigma) of engaging in activity, while moderate-severe caregivers discuss activity as preserving abilities in PWD and providing connection to cohort. This may indicate areas for improved activity provision and support for spouse (i.e. emotional) and adult-children (i.e. resources) caregivers across dementia stages.
对那些照顾患有痴呆症且正在服用胆碱酯酶抑制剂的患者、每周三天以上且每次照顾时长超过3小时的照料者进行了访谈。本研究采用主题内容分析法，比较配偶照料者（n = 613）和成年子女照料者（n = 260），以及轻度痴呆阶段照料者（n = 314）和中度至重度痴呆阶段照料者（n = 280）对开放式问题“你认为参与家庭以外的活动对患有痴呆症的人意味着什么？”的回答。对于成年子女照料者来说，活动参与能促进其父母的独立性。配偶照料者则在与痴呆症患者的关系背景下描述活动，且这种经历围绕着他们作为夫妻的持续社会角色展开。轻度痴呆阶段的照料者报告了参与活动的困难和负面结果（如挫折感、污名化），而中度至重度痴呆阶段的照料者则将活动视为维持痴呆症患者的能力并提供与同龄人联系的方式。这可能表明在不同痴呆阶段，为配偶照料者（即情感方面）和成年子女照料者（即资源方面）改善活动提供和支持的方向。
