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“我只是忘了服用它”:青少年哮喘自我管理的需求与偏好

"I just forget to take it": asthma self-management needs and preferences in adolescents.

作者信息

Koster Ellen S, Philbert Daphne, de Vries Tjalling W, van Dijk Liset, Bouvy Marcel L

机构信息

a Division of Department of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Pharmacy Practice Network for Education and Research (UPPER) , Utrecht University , Utrecht , The Netherlands .

出版信息

J Asthma. 2015 Oct;52(8):831-7. doi: 10.3109/02770903.2015.1020388. Epub 2015 Jun 2.

Abstract

BACKGROUND

Medication adherence rates often decline as children become teenagers. Effective adherence-enhancing interventions for adolescents are lacking. The objective of this study was to assess adolescent asthmatics needs and preferences regarding medication counseling and support, with focus on new media.

METHODS

Three focus groups including 21 asthmatic adolescents recruited from both primary and secondary care were held to explore needs and preferences regarding asthma-self management. Questions concerned adherence behavior and needs and preferences in adherence support with focus on new media (mobile technology, social media, health games).

RESULTS

Forgetting was mentioned as major reason for not using medication as prescribed. Adolescents also mentioned lack of perceived need or beneficial effects. Parents mainly play a role in reminding to take medication and collecting refills. The suggested strategies to support self-management included smartphone applications with a reminder function and easy access to online information. Participants were positive about sharing of experiences with other teenagers.

CONCLUSION

Forgetfulness is a major reason for non-adherence in adolescents. Furthermore, our results suggest use of peer support may be helpful in promoting good medication use. Future interventions should be aimed at providing practical reminders and should be modifiable to individual preferences.

摘要

背景

随着儿童成长为青少年,药物依从率往往会下降。目前缺乏针对青少年的有效提高依从性的干预措施。本研究的目的是评估青少年哮喘患者在药物咨询和支持方面的需求和偏好,重点关注新媒体。

方法

我们组织了三个焦点小组,从初级和二级医疗机构招募了21名哮喘青少年,以探讨他们在哮喘自我管理方面的需求和偏好。问题涉及依从行为以及在依从支持方面的需求和偏好,重点是新媒体(移动技术、社交媒体、健康游戏)。

结果

忘记被提及为未按规定用药的主要原因。青少年还提到缺乏感知到的需求或有益效果。父母主要在提醒用药和取药 refill方面发挥作用。支持自我管理的建议策略包括具有提醒功能且易于获取在线信息的智能手机应用程序。参与者对与其他青少年分享经验持积极态度。

结论

遗忘是青少年不依从的主要原因。此外,我们的结果表明,利用同伴支持可能有助于促进良好的药物使用。未来的干预措施应旨在提供实际提醒,并应根据个人偏好进行调整。

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