Kouris Anargyros, Christodoulou Christos, Efstathiou Vasiliki, Chatzimichail Iakovoula, Zakopoulou Nikoletta, Zouridaki Eftychia
Department of Dermatology and Venereology, "Andreas Sygros" Skin Hospital, Athens, Greece.
2nd Department of Psychiatry, "Attikon" University Hospital, Athens, Greece.
Wound Repair Regen. 2015 Sep;23(5):778-80. doi: 10.1111/wrr.12326. Epub 2015 Sep 14.
Leg ulcers have been shown to have a significant impact on a patient's quality of life (QoL). Little is known, however, about the secondary impact of the disease on the QoL of the relatives and partners of patients with leg ulcers. The aim of this study was to explore the impact of chronic leg ulcers on the lives of both patients and their family members. Two hundred sixteen patients with leg ulcers and their family members were recruited. All patients entered were evaluated for QoL using the Dermatology Life Quality Index (DLQI) scale, and family members were similarly evaluated using the Family Dermatology Life Quality Index (FDLQI).The study included 56 female and 52 male patients, and 50 female and 58 male family members. The FDLQI score for the latter group was 14.37 ± 2.46 with over 96% of family members reporting a large effect on their QoL due to their relative's disease. The DLQI score in patients with leg ulcers was 13.18 ± 2.88. A significant positive and high correlation between DLQI and FDLQI scores (r = 0.71, p < 0.001) was documented, while DLQI contributed significantly to the prediction of FDLQI (standardized β = 0.71, p < 0.001). Our study results indicate that the QoL of the family was also affected by the patient's condition of chronic leg ulcers and clearly associated with that of the patients.
腿部溃疡已被证明会对患者的生活质量（QoL）产生重大影响。然而，对于该疾病对腿部溃疡患者的亲属和伴侣生活质量的继发性影响却知之甚少。本研究的目的是探讨慢性腿部溃疡对患者及其家庭成员生活的影响。招募了216名腿部溃疡患者及其家庭成员。所有纳入的患者均使用皮肤病生活质量指数（DLQI）量表评估生活质量，家庭成员则使用家庭皮肤病生活质量指数（FDLQI）进行类似评估。该研究包括56名女性患者和52名男性患者，以及50名女性家庭成员和58名男性家庭成员。后一组的FDLQI评分为14.37±2.46，超过96%的家庭成员报告其亲属的疾病对他们的生活质量有很大影响。腿部溃疡患者的DLQI评分为13.18±2.88。记录到DLQI和FDLQI评分之间存在显著的正相关且相关性较高（r = 0.71，p < 0.001），而DLQI对FDLQI的预测有显著贡献（标准化β = 0.71，p < 0.001）。我们的研究结果表明，患者慢性腿部溃疡的状况也会影响其家庭的生活质量，并且与患者的生活质量明显相关。
