Cantú-Quintanilla Guillermo, Ferris María, Otero Araceli, Gutiérrez-Almaraz Anabel, Valverde-Rosas Saúl, Velázquez-Jones Luis, Luque-Coqui Mercedes, Cohen Sarah, Medeiros Mara
Escuela de Medicina Universidad Panamericana.
University of North Carolina at Chapel Hill.
J Pediatr Nurs. 2015 Sep-Oct;30(5):e71-81. doi: 10.1016/j.pedn.2015.06.011. Epub 2015 Jul 20.
There is a lack of valid health care transition readiness (HCT) scales in Spanish.
To provide initial validation of the UNC TRxANSITION Scale™ among Mexican adolescents and young adults (youth) with chronic kidney disease (CKD).
We used the professionally translated/back translated, provider-administered UNC TRxANSITION Scale™ (Ferris et al., 2012). This 33-question scale measures HCT in ten sub-scales including knowledge about diagnosis or treatment, diet, reproductive health, school/work, insurance, ability to self-manage and looking for new health providers. Its maximum score is 10. We enrolled 163 Mexican adolescents (48.5% females) with CKD stage≥3, mean age of 15.1years (±2.1) and whose primary language is Spanish. There were 15 patients on hemodialysis (9.2%) and 30 transplant recipients (18.4%). Results were compared to those reported in adolescents with chronic conditions from the USA.
Our cohort's overall median total score was 5.9. Patients≥16years old had a median total score of 6.4, whereas younger patients had median score of 5.6 (p<0.05). Transplant patients had greater scores in the total and the sub-scales of medication knowledge, issues of reproduction, insurance, trade/work and adherence (p<0.05). When comparing the total score (by age), results from our Mexican youth were similar to those reported in youth from the USA.
In our Mexican cohort of youth with CKD, health care transition readiness is greater in older patients and in transplant recipients. Our cohort's overall score is low, indicating the need for a health care transition preparation program. The UNC TRxANSITION Scale™ results in Mexican youth with CKD are comparable to findings in youth from the USA.
西班牙语中缺乏有效的医疗保健过渡准备情况(HCT)量表。
对慢性肾脏病(CKD)的墨西哥青少年及青年(年轻人)进行北卡罗来纳大学TRxANSITION量表™的初步验证。
我们使用了经专业翻译/回译、由医护人员管理的北卡罗来纳大学TRxANSITION量表™(费里斯等人,2012年)。这个包含33个问题的量表在十个子量表中测量HCT,包括关于诊断或治疗、饮食、生殖健康、学校/工作、保险、自我管理能力以及寻找新的医疗服务提供者的知识。其最高分是10分。我们纳入了163名CKD≥3期的墨西哥青少年(48.5%为女性),平均年龄15.1岁(±2.1),其母语为西班牙语。有15名患者接受血液透析(9.2%),30名移植受者(18.4%)。将结果与美国患有慢性病的青少年报告的结果进行比较。
我们队列中的总体中位数总分是5.9。年龄≥16岁的患者中位数总分是6.4,而较年轻患者的中位数分数是5.6(p<0.05)。移植患者在药物知识、生殖问题、保险、贸易/工作和依从性的总分及子量表中得分更高(p<0.05)。在比较总分(按年龄)时,我们墨西哥年轻人的结果与美国年轻人报告的结果相似。
在我们患有CKD的墨西哥年轻人群体中,年龄较大的患者和移植受者的医疗保健过渡准备情况更好。我们队列的总体得分较低,表明需要一个医疗保健过渡准备项目。北卡罗来纳大学TRxANSITION量表™在患有CKD的墨西哥年轻人中的结果与美国年轻人的研究结果相当。