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患有镰状细胞贫血的青少年:在为一所高等院校服务的私立三级医院中的经验。

Adolescents with sickle cell anaemia: Experience in a private tertiary hospital serving a tertiary institution.

作者信息

John-Olabode Sarah, Awodele Ibironke, Oni Omolade

机构信息

Department of Haematology, Ben Carson School of Medicine, Babcock University, Ogun, Nigeria.

出版信息

Niger Med J. 2015 May-Jun;56(3):204-7. doi: 10.4103/0300-1652.160397.

Abstract

BACKGROUND

Many adolescents with sickle cell disease (SCD) have adjustment difficulties in the transition period from paediatric care to the adult system because they find themselves in unfamiliar waters where they have to learn to manage themselves. The aim of this study is to evaluate the prevalent crises and morbidities associated with SCD in adolescents in Babcock University Teaching Hospital (BUTH), to also assess the level of knowledge of these adolescents about SCD and to determine their emotional response to the disease.

MATERIALS AND METHODS

This was a retrospective review of case notes of adolescents with sickle cell anaemia that were seen in BUTH, from May 2013 to April 2014. Data extracted from the case notes was entered into a Microsoft (MS) Excel and analysed using descriptive statistics. Results were presented in tables.

RESULTS

A total of 50 subjects were seen in the department during this study period. Vaso-occlusive crises in the form of bone pains (93.1%) were the commonest crises encountered. Associated morbidities were malaria 34 (85%), tonsilitis 1 (2.5%), pneumonia 1 (2.5%), leg ulcer 1 (2.5%), azotaemia 1 (2.5%) and subarachnoid haemorrhage 2 (5%). Majority (88%) had adequate knowledge about general health maintenance while knowledge on nutrition and appropriate analgesia use is still inadequate. Eleven (22%) had symptoms of depression, four (8%) had suicidal ideation while one (2%) had a history of attempted suicide.

CONCLUSION

This study emphasizes the importance of psychosocial intervention as part of a comprehensive health management for people with SCD.

摘要

背景

许多镰状细胞病(SCD)青少年在从儿科护理过渡到成人医疗体系的阶段存在适应困难,因为他们进入了一个陌生的领域,必须学会自我管理。本研究的目的是评估巴布科克大学教学医院(BUTH)青少年中与SCD相关的常见危象和发病率,评估这些青少年对SCD的了解程度,并确定他们对该疾病的情绪反应。

材料与方法

这是一项对2013年5月至2014年4月期间在BUTH就诊的镰状细胞贫血青少年病例记录的回顾性研究。从病例记录中提取的数据录入微软(MS)Excel,并使用描述性统计进行分析。结果以表格形式呈现。

结果

在本研究期间,该科室共诊治了50名患者。最常见的危象是以骨痛形式出现的血管阻塞性危象(93.1%)。相关的发病率包括疟疾34例(85%)、扁桃体炎1例(2.5%)、肺炎1例(2.5%)、腿部溃疡1例(2.5%)、氮质血症1例(2.5%)和蛛网膜下腔出血2例(5%)。大多数(88%)对一般健康维护有足够的了解,而在营养和适当使用镇痛药方面的知识仍然不足。11名(22%)有抑郁症状,4名(8%)有自杀意念,1名(2%)有自杀未遂史。

结论

本研究强调了心理社会干预作为SCD患者综合健康管理一部分的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5bdb/4518338/20a8eeeb11d0/NMJ-56-204-g003.jpg

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