父母对脊髓脊膜膨出症婴儿治疗决策的看法：一项描述性研究。
Parental opinions on treatment decisions for myelomeningocele infants: a descriptive study.
作者信息
Jacobs R A, Negrete V, Johnson M, Korsch B M
机构信息
Department of Pediatrics, USC School of Medicine, Children's Hospital of Los Angeles 90027.
出版信息
Z Kinderchir. 1989 Dec;44 Suppl 1:11-3.
PMID:2623955
Abstract
Parents of MMC patients have strong attitudes and beliefs on specific issues. They believed in the need to be involved in decisions regarding their children and felt strongly that their role was central and was important as that of the physician. They believed also in the importance of providing both medical and nutritional care to handicapped infants with a minimum of government intrusion.
摘要
患有脊柱裂和脊髓脊膜膨出症（MMC）患儿的家长在特定问题上有着坚定的态度和信念。他们认为有必要参与关于自己孩子的决策，并强烈觉得自己的角色至关重要，与医生的角色同等重要。他们还认为，在政府干预最少的情况下，为残疾婴儿提供医疗和营养护理非常重要。
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