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让患有哮喘的青少年参与设计以患者为中心的移动应用程序,以辅助疾病自我管理。

Engaging Teens with Asthma in Designing a Patient-Centered Mobile App to Aid Disease Self-Management.

作者信息

Schneider Tali, Panzera Anthony D, Couluris Marisa, Lindenberger James, McDermott Robert, Bryant Carol A

机构信息

1 Florida Prevention Research Center, University of South Florida College of Public Health , Tampa, Florida.

2 Social Marketing Group, Community and Family Health, University of South Florida College of Public Health , Tampa, Florida.

出版信息

Telemed J E Health. 2016 Feb;22(2):170-175. doi: 10.1089/tmj.2015.0041. Epub 2015 Aug 10.

DOI:10.1089/tmj.2015.0041
PMID:26258994
Abstract

BACKGROUND

Despite the growing market of e-health disease self-management tools, few studies have reported the presence of teen patients in all phases of product design. While rates of American teens using mobile Internet grow, an opportunity to deliver disease self-management targeted for teen patients exists. Building on findings from previous investigations with teens with asthma, we explored teens' insights on the development of a patient-centered asthma management application (app).

MATERIALS AND METHODS

Two existing asthma apps were used by 16 teen asthmatics for 7-10 days. At the end of the trial period, in-depth interviews were conducted with each participant to gather insights about the user experience.

RESULTS

Participants requested more asthma-related content that educates them about their condition. Suggested improvements to currently available apps included a longer list of selectable symptoms to track, medication tracking, and more compelling interface features.

CONCLUSIONS

Participants showed interest in using apps for managing their asthma, yet recommended improvements on current design. Whereas national figures point to a more ubiquitous mobile device environment, implementation efforts must respond to participants' recommendations while minding lingering digital divides. Currently available apps lack appealing components that teens seek or desire. Subsequent development should include teens' participation in component design insights.

摘要

背景

尽管电子健康疾病自我管理工具的市场不断增长,但很少有研究报告青少年患者参与产品设计的各个阶段。随着美国青少年使用移动互联网的比例不断上升,为青少年患者提供疾病自我管理的机会也随之出现。基于先前对哮喘青少年患者调查的结果,我们探讨了青少年对以患者为中心的哮喘管理应用程序(应用)开发的见解。

材料与方法

16名青少年哮喘患者使用两款现有的哮喘应用程序7至10天。在试验期结束时,对每位参与者进行了深入访谈,以收集有关用户体验的见解。

结果

参与者要求提供更多与哮喘相关的内容,以帮助他们了解自己的病情。对现有应用程序的改进建议包括增加可跟踪的可选症状列表、药物跟踪以及更具吸引力的界面功能。

结论

参与者对使用应用程序管理哮喘表现出兴趣,但建议对当前设计进行改进。尽管全国数据显示移动设备环境更为普遍,但实施工作必须在考虑到持续存在的数字鸿沟的同时,回应参与者的建议。现有应用程序缺乏青少年所寻求或期望的吸引人的组件。后续开发应包括青少年参与组件设计见解。

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