居家综合姑息治疗的远程会诊:一项定性研究。
Teleconsultation for integrated palliative care at home: A qualitative study.
作者信息
van Gurp Jelle, van Selm Martine, van Leeuwen Evert, Vissers Kris, Hasselaar Jeroen
机构信息
Department of Anesthesiology, Pain and Palliative Medicine, Radboud University Nijmegen Medical Center, Nijmegen, The Netherlands
Amsterdam School of Communication Research, University of Amsterdam, Amsterdam, The Netherlands.
出版信息
Palliat Med. 2016 Mar;30(3):257-69. doi: 10.1177/0269216315598068. Epub 2015 Aug 12.
BACKGROUND
Interprofessional consultation contributes to symptom control for home-based palliative care patients and improves advance care planning. Distance and travel time, however, complicate the integration of primary care and specialist palliative care. Expert online audiovisual teleconsultations could be a method for integrating palliative care services.
AIM
This study aims to describe (1) whether and how teleconsultation supports the integration of primary care, specialist palliative care, and patient perspectives and services and (2) how patients and (in)formal caregivers experience collaboration in a teleconsultation approach.
DESIGN
This work consists of a qualitative study that utilizes long-term direct observations and in-depth interviews.
SETTING/PARTICIPANTS: A total of 18 home-based palliative care patients (16 with cancer, 2 with chronic obstructive pulmonary disease; age range 24-85 years old), 12 hospital-based specialist palliative care team clinicians, and 17 primary care physicians.
RESULTS
Analysis showed that the introduction of specialist palliative care team-patient teleconsultation led to collaboration between primary care physicians and specialist palliative care team clinicians in all 18 cases. In 17/18 cases, interprofessional contact was restricted to backstage work after teleconsultation. In one deviant case, both the patient and the professionals were simultaneously connected through teleconsultation. Two themes characterized integrated palliative care at home as a consequence of teleconsultation: (1) professionals defining responsibility and (2) building interprofessional rapport.
CONCLUSION
Specialist palliative care team teleconsultation with home-based patients leads to collaboration between primary care physicians and hospital-based palliative care specialists. Due to cultural reasons, most collaboration was of a multidisciplinary character, strongly relying on organized backstage work. Interdisciplinary teleconsultations with real-time contact between patient and both professionals were less common but stimulated patient-centered care dialogues.
背景
跨专业会诊有助于居家姑息治疗患者的症状控制,并改善临终关怀计划。然而,距离和出行时间使初级保健与专科姑息治疗的整合变得复杂。专家在线视听远程会诊可能是整合姑息治疗服务的一种方法。
目的
本研究旨在描述(1)远程会诊是否以及如何支持初级保健、专科姑息治疗以及患者观点和服务的整合,以及(2)患者和(非)正式照护者如何体验远程会诊方法中的协作。
设计
本研究为定性研究,采用长期直接观察和深入访谈。
背景/参与者:共有18名居家姑息治疗患者(16名癌症患者,2名慢性阻塞性肺疾病患者;年龄范围24 - 85岁)、12名医院专科姑息治疗团队的临床医生以及17名初级保健医生。
结果
分析表明,引入专科姑息治疗团队与患者的远程会诊后,18例患者中初级保健医生与专科姑息治疗团队临床医生均开展了协作。18例中有17例,跨专业联系仅限于远程会诊后的幕后工作。在1例特殊情况下,患者和专业人员通过远程会诊同时连线。远程会诊使居家姑息治疗呈现出两个整合特征主题:(1)专业人员明确职责,(2)建立跨专业融洽关系。
结论
专科姑息治疗团队与居家患者的远程会诊促成了初级保健医生与医院姑息治疗专家之间的协作。由于文化原因,大多数协作具有多学科性质,严重依赖有组织的幕后工作。患者与双方专业人员进行实时联系的跨学科远程会诊较少见,但促进了以患者为中心的护理对话。