道德风向标。
The ethics weathervane.
作者信息
Knoppers Bartha Maria, Chadwick Ruth
机构信息
Centre of Genomics and Policy, McGill University, 740 Ave Dr. Penfield Suite 5200, Montreal, QC, H3A 0G1, Canada.
Centre for Social Ethics and Policy, Manchester Law School, Williamson Building, Oxford Road, Manchester, M13 9PL, UK.
出版信息
BMC Med Ethics. 2015 Sep 4;16:58. doi: 10.1186/s12910-015-0054-4.
BACKGROUND
Global collaboration in genomic research is increasingly both a scientific reality and an ethical imperative. This past decade has witnessed the emergence of six new, interconnected areas of ethical consensus and emphasis for policy in genomics: governance, security, empowerment, transparency, the right not to know, and globalization.
DISCUSSION
The globalization of genomic research warrants an approach to governance policies grounded in human rights. A human rights approach activates the ethical principles underpinning genomic research. It lends force to the right of all citizens to benefit from scientific progress, and to the right of all scientists to be recognized for their contributions.
背景
基因组研究中的全球合作日益成为一种科学现实和伦理要求。在过去十年中，出现了六个新的、相互关联的基因组学伦理共识领域，并成为政策重点：治理、安全、赋权、透明度、不知情权和全球化。
讨论
基因组研究的全球化需要一种基于人权的治理政策方法。人权方法激活了支撑基因组研究的伦理原则。它强化了所有公民从科学进步中受益的权利，以及所有科学家因其贡献而获得认可的权利。
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