牙买加金斯敦镰状细胞病青少年的生活经历。
The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica.
作者信息
Forrester Andrea Brown, Barton-Gooden Antoinette, Pitter Cynthia, Lindo Jascinth L M
机构信息
The UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, Jamaica.
The UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, Jamaica;
出版信息
Int J Qual Stud Health Well-being. 2015 Sep 3;10:28104. doi: 10.3402/qhw.v10.28104. eCollection 2015.
AIM
To explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica.
METHOD
A descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University of the West Indies. Interviews were audiotaped, transcribed, and thematically analyzed.
RESULTS
The majority of the adolescents demonstrated a positive self-concept. They reported strong family, school, and peer support which made them feel accepted. All were actively engaged in social activities such as parties, but had challenges participating in sporting activities. Various coping strategies were utilized to address challenges of the disease including praying, watching television, and surfing the Internet.
CONCLUSION
Sickle cell disease can be very challenging for the adolescent, but with positive self-concept and increased social support, especially from family and peers, these adolescents were able to effectively cope with their condition and live productive lives.
目的
探索牙买加金斯敦患有镰状细胞病青少年的生活经历。
方法
本研究采用描述性定性设计。在西印度群岛大学运营的镰状细胞病治疗中心，对六名患有镰状细胞病的青少年进行了深入访谈。访谈进行了录音、转录，并进行了主题分析。
结果
大多数青少年表现出积极的自我概念。他们报告说，来自家庭、学校和同龄人的强大支持让他们感到被接纳。所有人都积极参与社交活动，如派对，但在参加体育活动方面存在困难。他们采用了各种应对策略来应对疾病带来的挑战，包括祈祷、看电视和上网。
结论
镰状细胞病对青少年来说可能极具挑战性，但凭借积极的自我概念和更多的社会支持，尤其是来自家庭和同龄人的支持，这些青少年能够有效应对自身状况并过上充实的生活。
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