Adegbola Maxine A, Barnes Donelle M, Opollo Jakki G, Herr Keela, Gray Jennifer, McCarthy Ann Marie
University of Texas at Arlington, Arlington, TX.
Center for Nursing Scholarship & Technology, University of Texas at Arlington College of Nursing, Arlington, TX.
J Natl Black Nurses Assoc. 2012 Dec;23(2):16-23.
The purpose of this qualitative study was to describe the lived experiences of adults with sickle cell disease-related pain. Using a qualitative, phenomenological approach, a purposive sample of 13 African-American adults living with Sickle Cell Disease (SCD) was recruited from a national SCD support group. Participants were asked to describe living with SCD-related pain and their experiences with pain management. Four themes emerged from the data: (1) description of the pain experience, (2) pain scales do not work, (3) managing pain, and (4) managing relationships. Persons living with SCD need comprehensive pain assessment from Health-Care Providers [HCPs], who recognize the impact of pain on their patients' lives. The findings support further research aimed at the assessment and management of SCD-related pain. HCPs are strategically positioned to improve health outcomes for those with SCD pain by listening to patients' unique stories and accurately assessing and effectively intervening to promote pain relief for patients living with SCD-related pain.
这项定性研究的目的是描述患有镰状细胞病相关疼痛的成年人的生活经历。采用定性现象学方法，从一个全国性的镰状细胞病支持小组中招募了13名患有镰状细胞病（SCD）的非裔美国成年人作为有目的的样本。参与者被要求描述患有与镰状细胞病相关疼痛的生活以及他们在疼痛管理方面的经历。数据中出现了四个主题：（1）疼痛经历的描述，（2）疼痛量表不起作用，（3）疼痛管理，以及（4）关系管理。患有镰状细胞病的人需要医疗保健提供者（HCPs）进行全面的疼痛评估，这些提供者要认识到疼痛对其患者生活的影响。这些发现支持了旨在评估和管理与镰状细胞病相关疼痛的进一步研究。医疗保健提供者处于战略地位，可以通过倾听患者的独特故事、准确评估并有效干预，来改善患有镰状细胞病相关疼痛患者的健康状况，促进疼痛缓解。
