Morris Adam T, Gabert-Quillen Crystal, Friebert Sarah, Carst Nancy, Delahanty Douglas L
Division of Child and Adolescent Psychiatry, Johns Hopkins Medicine, Baltimore, Maryland, USA.
Department of Psychology, Middlesex Community College, Edison, New Jersey, USA.
J Pain Symptom Manage. 2016 Jan;51(1):60-70. doi: 10.1016/j.jpainsymman.2015.08.011. Epub 2015 Sep 18.
Families are referred to pediatric palliative care (PPC) programs when a child is diagnosed with a medical condition associated with less than a full life expectancy. When a child dies, PPC programs typically offer a range of bereavement interventions to these families, often focusing on parents. Currently, it is unclear which factors increase the likelihood that bereaved siblings will experience negative outcomes, limiting the development of empirically supported interventions that can be delivered in PPC programs.
The present study explored the relationship between parents' and surviving sibling's mental health symptoms (i.e., post-traumatic stress disorder [PTSD], prolonged grief disorder (PGD), and depression symptoms) after a child's death. Additionally, the extent to which parent functioning indirectly impacted sibling functioning through parenting behaviors (i.e., positive parenting and parent involvement) was also examined, with a specific focus on differences based on parent gender.
Sixty bereaved parents and siblings (aged 8-18) who enrolled in a PPC program from 2008 to 2013 completed measures of PTSD, PGD, and depression related to the loss of a child/sibling. Siblings also completed a measure of general parenting behaviors.
Maternal, but not paternal, symptoms of PTSD and PGD were directly associated with sibling outcomes. Paternal symptoms were associated with sibling symptoms indirectly, through parenting behaviors (i.e., via decreasing positive parenting).
These results underscore the importance of examining both maternal and paternal influences after the death of a child, demonstrate differential impact of maternal vs. paternal symptoms on siblings, and stress the importance of addressing postloss symptoms from a family systems perspective.
当儿童被诊断出患有预期寿命较短的疾病时,其家庭会被转介至儿科姑息治疗(PPC)项目。当孩子去世后,PPC项目通常会为这些家庭提供一系列丧亲干预措施,且往往以父母为重点。目前尚不清楚哪些因素会增加丧亲兄弟姐妹出现负面结果的可能性,这限制了PPC项目中基于实证的干预措施的发展。
本研究探讨了儿童死亡后父母与在世兄弟姐妹心理健康症状(即创伤后应激障碍[PTSD]、持续性悲伤障碍[PGD]和抑郁症状)之间的关系。此外,还研究了父母功能通过养育行为(即积极养育和父母参与)对兄弟姐妹功能产生间接影响的程度,并特别关注基于父母性别的差异。
2008年至2013年期间参加PPC项目的60对丧亲父母和兄弟姐妹(年龄在8至18岁之间)完成了与孩子/兄弟姐妹死亡相关的PTSD、PGD和抑郁测量。兄弟姐妹还完成了一项关于一般养育行为的测量。
母亲而非父亲的PTSD和PGD症状与兄弟姐妹的结果直接相关。父亲的症状通过养育行为(即通过减少积极养育)与兄弟姐妹的症状间接相关。
这些结果强调了在孩子死亡后同时考察母亲和父亲影响的重要性,证明了母亲与父亲症状对兄弟姐妹的不同影响,并强调了从家庭系统角度解决丧亲后症状的重要性。