Lundin Karin, Stillesjö Fredrik, Nyberg Gunnar, Rask-Andersen Helge
a Department of Surgical Sciences, Section of Otorhinolaryngology, and Head & Neck Surgery , Uppsala University , Uppsala , Sweden.
Acta Otolaryngol. 2016;136(1):62-7. doi: 10.3109/00016489.2015.1079925. Epub 2015 Oct 1.
The majority of the patients used their auditory brainstem implants (ABIs) all the time, reporting that he/she would make the decision to receive an implant again if the decision were reconsidered. The findings support that the ABI is a valuable treatment in patients with type 2 neurofibromatosis (NF2) and in children with congenital inner ear and nerve anomalies or cochlear ossification.
To evaluate the patients who underwent ABI implantation in Uppsala during 1993-2013. This study analyzed patients' implant use, perception of environmental sounds, perceived benefit from the implant, and quality-of-life (QoL).
The NF2-patients (n = 20) comprised the majority of the patients, and there were a few non-NF2 pediatric patients (n = 4). The exclusion criteria included deceased patients (n = 4) and patients with no hearing sensations from the implant, or those with an inactivated ABI (n = 2). The data were collected from a questionnaire survey.
Eleven adult patients and two pediatric patients answered the questionnaires. Eight of the adult patients used their implants 'always'. The two children always used their implants. Hearing problems had the largest negative effect on the QoL. The non-users and the users scored equally on the NFTI-QoL.
大多数患者一直使用他们的听觉脑干植入物（ABI），并表示如果重新考虑这一决定，他/她会再次决定接受植入。这些发现支持ABI对2型神经纤维瘤病（NF2）患者以及患有先天性内耳和神经异常或耳蜗骨化的儿童是一种有价值的治疗方法。
评估1993年至2013年期间在乌普萨拉接受ABI植入的患者。本研究分析了患者的植入物使用情况、对环境声音的感知、从植入物中获得的感知益处以及生活质量（QoL）。
NF2患者（n = 20）占大多数，还有少数非NF2儿科患者（n = 4）。排除标准包括已故患者（n = 4）以及植入物无听觉感觉或ABI已停用的患者（n = 2）。数据通过问卷调查收集。
11名成年患者和2名儿科患者回答了问卷。8名成年患者“总是”使用他们的植入物。这两名儿童一直使用他们的植入物。听力问题对生活质量的负面影响最大。非使用者和使用者在NFTI-QoL上得分相同。
