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单心室心脏病的产前咨询与护理:一个中心的护理模式

Prenatal Counseling and Care for Single-Ventricle Heart Disease: One Center's Model for Care.

作者信息

Lafranchi Terra, Lincoln Patricia

机构信息

Terra Lafranchi is a nurse practitioner in the Department of Cardiology at Boston Children's Hospital. She is the fetal cardiology coordinator and also provides longitudinal pediatric cardiac care.Patricia Lincoln is a clinical nurse specialist in the cardiovascular intensive care unit at Boston Children's Hospital.

出版信息

Crit Care Nurse. 2015 Oct;35(5):53-61. doi: 10.4037/ccn2015247.

DOI:10.4037/ccn2015247
PMID:26427975
Abstract

Advances in prenatal imaging allow early detection of single-ventricle congenital heart disease, which may enhance prenatal care and maximize care options and decision making. Boston Children's Hospital's Advanced Fetal Care Center and fetal cardiology program provide prenatal counseling and care for single-ventricle congenital heart disease. Key points for optimal prenatal counseling and education include explanation of the diagnosis, delivery, the first surgery, cardiac neurodevelopmental issues, feeding and growth issues, quality of life and long-term care, family stressors, and fetal cardiac intervention. Such counseling and education help families make the difficult decisions required in this situation.

摘要

产前成像技术的进步使得单心室先天性心脏病能够被早期检测出来,这可能会加强产前护理,并使护理选择和决策最优化。波士顿儿童医院的高级胎儿护理中心和胎儿心脏病项目为单心室先天性心脏病提供产前咨询和护理。最佳产前咨询和教育的要点包括对诊断、分娩、首次手术、心脏神经发育问题、喂养和生长问题、生活质量和长期护理、家庭压力源以及胎儿心脏干预的解释。此类咨询和教育有助于家庭做出这种情况下所需的艰难决定。

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