Weyer-Wendl H, Tamm M, Walter P
Universitäts-Augenklinik Aachen, RWTH Aachen, Pauwelsstr. 30, 52074, Aachen, Deutschland.
Institut für Medizinische Statistik, RWTH Aachen, Aachen, Deutschland.
Ophthalmologe. 2016 Mar;113(3):230-9. doi: 10.1007/s00347-015-0135-2.
Informal caregivers of patients with loss of vision often have to give physical and emotional support because of the high level of dependence induced. Although it is known that these informal caregivers suffer a higher risk of being affected by burn-out syndrome or depression, the various dimensions of burden, especially of informal caregivers of patients with neovascular age-related macular degeneration (nv-AMD) have not yet been investigated.
The objective of this study was the evaluation of the German version of the caregiver reaction assessment (CRA) questionnaire in a collective of informal caregivers of patients with nv-AMD. In this context the positive and negative influences on the informal caregivers were assessed.
Between January 2013 and July 2014 a total of 150 informal caregivers of patients with nv-AMD filled out the CRA independently using a questionnaire survey which had been translated into German. Based on this collective, the psychometric characteristics of the translated questionnaire were evaluated.
The informal caregivers of the current collective reported a lower burden in the five subgroups disrupted schedule, lack of family support, self-esteem, health problems and financial problems, compared to the previous CRA studies with caregivers of patients with other diseases. The informal caregivers saw the greatest burden as the disruption of their schedule. Through a principal component analysis the five subgroups could be identified as five factors. It was shown that 19 out of the 24 items could be assigned to the same factors as in the original English version. The internal consistency of the five subgroups was acceptable except for the subscale on self-esteem.
In this study the CRA has been confirmed as a suitable instrument to assess both positive and negative reactions of informal caregivers related to caregiving of patients with nv-AMD. The results provide support for a five subscale structure of the CRA in the original English version but five items of the questionnaire could be assigned to another subscale.
视力丧失患者的非正式照料者常常因患者的高度依赖而不得不给予身体和情感上的支持。尽管已知这些非正式照料者遭受职业倦怠综合征或抑郁症影响的风险更高，但负担的各个维度，尤其是新生血管性年龄相关性黄斑变性（nv-AMD）患者的非正式照料者的负担维度尚未得到研究。
本研究的目的是在nv-AMD患者的非正式照料者群体中评估德语版的照料者反应评估（CRA）问卷。在此背景下，评估对非正式照料者的积极和消极影响。
2013年1月至2014年7月期间，共有150名nv-AMD患者的非正式照料者使用一份已翻译成德语的问卷调查独立填写CRA。基于这个群体，评估翻译后问卷的心理测量特征。
与之前针对其他疾病患者照料者的CRA研究相比，当前群体的非正式照料者在日程安排打乱、缺乏家庭支持、自尊、健康问题和经济问题这五个亚组中报告的负担较低。非正式照料者认为最大的负担是日程安排被打乱。通过主成分分析，这五个亚组可被确定为五个因素。结果表明，24个项目中有19个可与原始英文版归为相同因素。除自尊分量表外，五个亚组的内部一致性是可以接受的。
在本研究中，CRA已被确认为评估nv-AMD患者非正式照料者与照料相关的积极和消极反应的合适工具。结果为原始英文版CRA的五个分量表结构提供了支持，但问卷中的五个项目可归为另一个分量表。
