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烧伤患者康复阶段颜面恢复、感知变化及应对策略

Recovery of lost face of burn patients, perceived changes, and coping strategies in the rehabilitation stage.

作者信息

Ren Zhengjia, Chang Weining C, Zhou Qin, Wang Yishen, Wang Hongtao, Hu Dahai

机构信息

Mental Health Center, West China Medical College, Sichuan University, Chengdu, China.

Duke-National University of Singapore Graduate School of Medicine, Singapore; The Institute of Mental Health, Singapore.

出版信息

Burns. 2015 Dec;41(8):1855-1861. doi: 10.1016/j.burns.2015.08.033. Epub 2015 Oct 9.

Abstract

BACKGROUND

Although burn is a highly traumatic experience, little has been reported on the perception of the individual burn patient in the Chinese cultural context. For developing more culturally sensitive rehabilitation strategies for burn survivors, the present study was conducted to elucidate their perceived changes and to construct a theoretical model of their subjective experience and coping strategies.

METHODS

Data were collected from a burn center in China in 2013. Fifteen patients recruited via a theoretical sampling method participated in semi-structured, face-to-face interviews. The grounded theory approach was used to analyze the data.

RESULTS

Six response categories were generated from the data, and the correlations between the categories were identified to form a paradigm model. The basic elements of the paradigm model were "unexpected body suffering," "losing face," "constructing a new identity," "perceived social rejection," "self-exploratory coping," and "striving to regain their own life."

CONCLUSION

The findings of the present study suggested that burn survivors encountered such challenges as "unexpected suffering," "culture-related stigma," "perceived social rejection," and "constructing a new identity." Limited and inappropriate coping strategies may hinder the effective rehabilitation of burn survivors. In addition, burns must be understood in the social-cultural context to develop effective coping strategies for reintegration into society.

摘要

背景

尽管烧伤是一种极具创伤性的经历,但在中国文化背景下,关于个体烧伤患者的认知却鲜有报道。为了为烧伤幸存者制定更具文化敏感性的康复策略,本研究旨在阐明他们所感知到的变化,并构建一个关于他们主观体验和应对策略的理论模型。

方法

2013年从中国一家烧伤中心收集数据。通过理论抽样方法招募的15名患者参与了半结构化的面对面访谈。采用扎根理论方法对数据进行分析。

结果

从数据中生成了六个反应类别,并确定了这些类别之间的相关性,以形成一个范式模型。该范式模型的基本要素包括“意外的身体痛苦”“丢脸”“构建新身份”“感知到的社会排斥”“自我探索性应对”以及“努力重获自己的生活”。

结论

本研究结果表明,烧伤幸存者面临着“意外痛苦”“与文化相关的耻辱”“感知到的社会排斥”以及“构建新身份”等挑战。有限且不适当的应对策略可能会阻碍烧伤幸存者的有效康复。此外,必须在社会文化背景下理解烧伤问题,以便制定有效的应对策略,帮助他们重新融入社会。

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