了解原住民和托雷斯海峡岛民儿童的烧伤情况：一项前瞻性队列研究方案。
Understanding burn injuries in Aboriginal and Torres Strait Islander children: protocol for a prospective cohort study.
作者信息
Ivers Rebecca Q, Hunter Kate, Clapham Kathleen, Coombes Julieann, Fraser Sarah, Lo Serigne, Gabbe Belinda, Hendrie Delia, Read David, Kimble Roy, Sparnon Anthony, Stockton Kellie, Simpson Renee, Quinn Linda, Towers Kurt, Potokar Tom, Mackean Tamara, Grant Julian, Lyons Ronan A, Jones Lindsey, Eades Sandra, Daniels John, Holland Andrew J A
机构信息
Injury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia School of Midwifery and Nursing, Flinders University, Adelaide, South Australia, Australia.
Injury Division, The George Institute for Global Health, University of Sydney, Sydney, New South Wales, Australia Poche Centre for Indigenous Health, University of Sydney, Sydney, New South Wales, Australia.
出版信息
BMJ Open. 2015 Oct 13;5(10):e009826. doi: 10.1136/bmjopen-2015-009826.
INTRODUCTION
Although Aboriginal and Torres Strait Islander children in Australia have higher risk of burns compared with non-Aboriginal children, their access to burn care, particularly postdischarge care, is poorly understood, including the impact of care on functional outcomes. The objective of this study is to describe the burden of burns, access to care and functional outcomes in Aboriginal and Torres Strait Islander children in Australia, and develop appropriate models of care.
METHODS AND ANALYSIS
All Aboriginal and Torres Strait Islander children aged under 16 years of age (and their families) presenting with a burn to a tertiary paediatric burn unit in 4 Australian States (New South Wales (NSW), Queensland, Northern Territory (NT), South Australia (SA)) will be invited to participate. Participants and carers will complete a baseline questionnaire; follow-ups will be completed at 3, 6, 12 and 24 months. Data collected will include sociodemographic information; out of pocket costs; functional outcome; and measures of pain, itch and scarring. Health-related quality of life will be measured using the PedsQL, and impact of injury using the family impact scale. Clinical data and treatment will also be recorded. Around 225 participants will be recruited allowing complete data on around 130 children. Qualitative data collected by in-depth interviews with families, healthcare providers and policymakers will explore the impact of burn injury and outcomes on family life, needs of patients and barriers to healthcare; interviews with families will be conducted by experienced Aboriginal research staff using Indigenous methodologies. Health systems mapping will describe the provision of care.
ETHICS AND DISSEMINATION
The study has been approved by ethics committees in NSW, SA, NT and Queensland. Study results will be distributed to community members by study newsletters, meetings and via the website; to policymakers and clinicians via policy fora, presentations and publication in peer-reviewed journals.
引言
尽管与非原住民儿童相比，澳大利亚原住民和托雷斯海峡岛民儿童遭受烧伤的风险更高，但人们对他们获得烧伤护理的情况，尤其是出院后护理的情况了解甚少，包括护理对功能结局的影响。本研究的目的是描述澳大利亚原住民和托雷斯海峡岛民儿童的烧伤负担、获得护理的情况以及功能结局，并制定合适的护理模式。
方法与分析
邀请所有16岁以下因烧伤前往澳大利亚4个州（新南威尔士州、昆士兰州、北领地、南澳大利亚州）的三级儿科烧伤病房就诊的原住民和托雷斯海峡岛民儿童（及其家庭）参与。参与者和照顾者将完成一份基线调查问卷；随访将在3个月、6个月、12个月和24个月时完成。收集的数据将包括社会人口统计学信息；自付费用；功能结局；以及疼痛、瘙痒和瘢痕形成的测量指标。将使用儿童生活质量量表（PedsQL）测量与健康相关的生活质量，并使用家庭影响量表测量损伤的影响。还将记录临床数据和治疗情况。将招募约225名参与者，从而获得约130名儿童的完整数据。通过对家庭、医疗保健提供者和政策制定者进行深入访谈收集的定性数据，将探讨烧伤损伤和结局对家庭生活的影响、患者的需求以及医疗保健的障碍；将由经验丰富的原住民研究人员采用本土方法对家庭进行访谈。卫生系统映射将描述护理的提供情况。
伦理与传播
该研究已获得新南威尔士州、南澳大利亚州、北领地和昆士兰州伦理委员会的批准。研究结果将通过研究通讯、会议以及网站分发给社区成员；通过政策论坛、报告以及在同行评审期刊上发表分发给政策制定者和临床医生。
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