The George Institute for Global Health Australia, UNSW, PO Box M201, Missenden Rd, NSW 2050, Australia; College of Medicine and Public Health, Flinders University, GPO Box 2100, SA 5001, Australia; School of Population Health, UNSW, Sydney, Australia, UNSW, 2052, Australia.
The George Institute for Global Health Australia, UNSW, PO Box M201, Missenden Rd, NSW 2050, Australia; College of Medicine and Public Health, Flinders University, GPO Box 2100, SA 5001, Australia; Flinders Health and Medical Research Institute, Flinders University, GPO Box 2100, SA 5001, Australia; School of Population Health, UNSW, Sydney, Australia, UNSW, 2052, Australia.
Burns. 2024 Nov;50(8):1947-1956. doi: 10.1016/j.burns.2024.07.018. Epub 2024 Jul 18.
Despite known inequalities, little is understood about the burden and healthcare experiences of Aboriginal and Torres Strait Islander children who sustain a burn injury and their families.
The Coolamon Study recruited parents and carers whose children (aged <16 years) were Aboriginal and / or Torres Strait Islander children and had presented to burn units across four Australian states, New South Wales (Sydney), Northern Territory (Darwin), Queensland (Brisbane, Townsville) and South Australia (Adelaide), between 2015 and 2018. Consent was obtained and carers completed baseline and subsequent interviews at 3, 6, 12 and 24 months. Data were collected on the injury event, patient care and safety, sociodemographic factors, health related quality of life (PedsQual), and psychological distress (Kessler K-5).
Of the 208 participants, 64 % were male; 26 % were aged less than 2 years and 37 % aged 2-4 years. The most common burn mechanisms were scalds (37 %), contact (33 %) and flame burns (21 %), with more severe burns and flame burns occurring in rural and remote settings. Most carers rated their child's care as either excellent or very good (82 %). Family distress, measured by the K-5, lessened over the 24 months, however the changes were not statistically significant. While 77 % of carers reported that they received enough information, 18 % reported they would have liked more, and 3 % reported no information was provided before treatment. Parents described mixed access to information about the types of support available to them, such as accommodation, meals, travel or cultural support.
Data from this cohort provide rich new information about risk factors and care received from point of injury through to rehabilitation for Aboriginal and Torres Strait Islander children with burns, providing unique insights into what is needed for appropriate, culturally safe care.
尽管存在已知的不平等现象，但对于因烧伤而受伤的原住民和托雷斯海峡岛民儿童及其家庭的负担和医疗保健经验，人们知之甚少。
Coolamon 研究招募了父母和照顾者，他们的孩子（年龄<16 岁）是原住民和/或托雷斯海峡岛民儿童，并且在 2015 年至 2018 年间在澳大利亚四个州的四个烧伤单位（新南威尔士州（悉尼），北领地（达尔文），昆士兰州（布里斯班，汤斯维尔）和南澳大利亚州（阿德莱德））就诊。获得了同意，并且照顾者在 3、6、12 和 24 个月时完成了基线和后续访谈。数据收集了伤害事件，患者护理和安全，社会人口统计学因素，健康相关生活质量（PedsQual）和心理困扰（Kessler K-5）。
在 208 名参与者中，有 64％是男性；26％的年龄小于 2 岁，37％的年龄为 2-4 岁。最常见的烧伤机制是烫伤（37％），接触（33％）和火焰烧伤（21％），在农村和偏远地区发生更严重的烧伤和火焰烧伤。大多数照顾者将其孩子的护理评为优秀或非常好（82％）。通过 K-5 测量的家庭困扰在 24 个月内减轻，但变化无统计学意义。尽管 77％的照顾者报告说他们收到了足够的信息，但 18％的人表示他们希望得到更多信息，而 3％的人表示在治疗前没有提供任何信息。父母们描述了他们对可获得的支持类型的信息的混合访问方式，例如住宿，餐食，旅行或文化支持。
该队列的数据提供了有关原住民和托雷斯海峡岛民儿童烧伤的受伤点至康复过程中风险因素和护理的丰富新信息，为提供适当的文化安全护理提供了独特的见解。
