Sahlgrenska Academy, Gothenburg University, The Institute of Health and Care Science, Sweden; Vårdal Institute, The Swedish Institute for Health Science, Sweden; Sahlgrenska University Hospital, Department of Psychiatry, Gothenburg, Sweden.
Vårdal Institute, The Swedish Institute for Health Science, Sweden; Linköping University, Department of Medical and Health Sciences, Sweden.
Patient Educ Couns. 2014 Mar;94(3):362-71. doi: 10.1016/j.pec.2013.10.020. Epub 2013 Nov 19.
Compare the impact of two interventions, a web-based support and a folder support, for young persons who care for people who suffer from mental illness.
This study was a randomized control trial, following the CONSORT statements, which compared the impact of two interventions. Primary outcome variable was stress, and secondary outcome variables were caring situation, general self-efficacy, well-being, health, and quality of life of young informal carers (N=241). Data were collected in June 2010 to April 2011, with self-assessment questionnaires, comparing the two interventions and also to detect changes.
The stress levels were high in both groups at baseline, but decreased in the folder group. The folder group had improvement in their caring situation (also different from the web group), general self-efficacy, well-being, and quality of life. The web group showed increase in well-being.
Young informal carers who take on the responsibility for people close to them; suffer consequences on their own health. They live in a life-situation characterized by high stress and low well-being. This signals a need for support.
The non-significant differences show that each intervention can be effective, and that it depends upon the individual's preferences. This highlights the importance of adopting person-centered approach, in which young persons can themselves choose support strategy.
比较两种干预措施，即基于网络的支持和文件夹支持，对照顾患有精神疾病的人的年轻人的影响。
这是一项随机对照试验，遵循 CONSORT 声明，比较了两种干预措施的影响。主要结局变量是压力，次要结局变量是照顾情况、一般自我效能感、幸福感、健康和年轻非正式照顾者的生活质量（N=241）。数据于 2010 年 6 月至 2011 年 4 月收集，使用自我评估问卷，比较两种干预措施，并检测变化。
两组基线时压力水平均较高，但文件夹组压力水平下降。文件夹组在照顾情况（也与网络组不同）、一般自我效能感、幸福感和生活质量方面有所改善。网络组的幸福感有所提高。
年轻的非正式照顾者承担起照顾亲近的人的责任；会对自己的健康产生影响。他们生活在一个以高压力和低幸福感为特征的生活环境中。这表明他们需要支持。
无显著性差异表明，每种干预措施都可能有效，这取决于个人的偏好。这凸显了采用以人为本的方法的重要性，即年轻人可以自行选择支持策略。
