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我们同舟共济:患者、护理人员和医疗服务提供者对非小细胞肺癌(NSCLC)的疾病认知。

We're in this together: Patients', caregivers' and health care providers' illness perceptions about non-small-cell lung cancer (NSCLC).

作者信息

Kaptein Ad A, Kobayashi Kunihiko, Matsuda Ayako, Kubota Kaoru, Nagai Shigenori, Momiyama Manami, Sugisaki Michiyo, Bos Bernadette C M, Warning Thalita D, Dik Hans, Klink Rik van, Inoue Kenichi, Ramai Rajen, Taube Christian, Kroep Judith R, Fischer Maarten J

机构信息

Medical Psychology, Leiden University Medical Centre (LUMC), Leiden, The Netherlands.

Respiratory Medicine, Saitama International Medical Centre, Yamane, Hidaka City, Japan.

出版信息

Lung Cancer. 2015 Dec;90(3):575-81. doi: 10.1016/j.lungcan.2015.10.017. Epub 2015 Oct 19.

DOI:10.1016/j.lungcan.2015.10.017
PMID:26520188
Abstract

This study reviews empirical studies in the area of illness perceptions in patients with non-small-cell lung cancer (NSCLC). Beliefs about the illness and its consequences, including its medical management, are part of the review. Also, the relatively small research area of perceptions and views about patients with NSCLC of caregivers and health care providers is reviewed. Given our earlier review of the topic in this Journal [5], we now report on papers published after that 2011 publication. 38 papers were identified, a quite major increase in published research compared to the 15 papers in our previous publication (2011 and earlier). Most papers report on psychosocial concepts that determine responses to the illness and its treatment. Increasingly, reactions of caregivers and health care providers are studied. These last two categories of respondents perceive the psychosocial consequences of NSCLC as more severe than the patients themselves. Psychosocial variables appear to be stronger predictors of psychological distress and reduced quality of life than sociodemographic or clinical variables. These results are instrumental in the developing field of psychosocial interventions for patients with non-small-cell lung cancer and their caregivers, which may also be helpful for health care providers. Suggestions for research and clinical implications are presented.

摘要

本研究回顾了非小细胞肺癌(NSCLC)患者疾病认知领域的实证研究。关于疾病及其后果(包括医疗管理)的信念是回顾的一部分。此外,还回顾了护理人员和医疗保健提供者对NSCLC患者的认知和看法这一相对较小的研究领域。鉴于我们之前在本期刊上对该主题的回顾[5],我们现在报告2011年该出版物之后发表的论文。共识别出38篇论文,与我们之前出版物(2011年及更早)中的15篇相比,发表的研究有了相当大的增加。大多数论文报告了决定对疾病及其治疗反应的社会心理概念。越来越多的研究关注护理人员和医疗保健提供者的反应。后两类受访者认为NSCLC的社会心理后果比患者本人认为的更严重。与社会人口统计学或临床变量相比,社会心理变量似乎是心理困扰和生活质量下降的更强预测因素。这些结果对非小细胞肺癌患者及其护理人员的社会心理干预这一发展中的领域具有重要意义,这对医疗保健提供者也可能有帮助。本文还提出了研究建议和临床意义。

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We're in this together: Patients', caregivers' and health care providers' illness perceptions about non-small-cell lung cancer (NSCLC).我们同舟共济:患者、护理人员和医疗服务提供者对非小细胞肺癌(NSCLC)的疾病认知。
Lung Cancer. 2015 Dec;90(3):575-81. doi: 10.1016/j.lungcan.2015.10.017. Epub 2015 Oct 19.
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The experience of a diagnosis of advanced lung cancer: sleep is not a priority when living my life.被诊断为晚期肺癌的经历:当我活着的时候,睡眠已不再是优先事项。
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引用本文的文献

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Portraying a grim illness: lung cancer in novels, poems, films, music, and paintings.描绘严峻疾病:小说、诗歌、电影、音乐和绘画中的肺癌。
Support Care Cancer. 2018 Nov;26(11):3681-3689. doi: 10.1007/s00520-018-4222-1. Epub 2018 May 7.