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[作为一名精神分裂症患者的子女、一名患者以及一名精神科医生:给所有日本精神分裂症研究学会会员的一封信]

[As a Child of a Parent with Schizophrenia, as a Patient, and as a Psychiatrist: A Message to All JSPN Members].

作者信息

Natsukari Ikuko

出版信息

Seishin Shinkeigaku Zasshi. 2015;117(3):228-33.

PMID:26524850
Abstract

I previously published an article, entitled About "Regarding a person Who recovers". It documents the actual situation and recovery of a family member with schizophrenia, and it does not describe my recovery as a patient as a psychiatrist. At the time of publication, the main purpose was to disclose the real name of the family member. Since the disclosure, I have met many patients and families, and learned their true thoughts and strengths that I would have never known simply through consultation, and this totally changed my perceptions of them. Meanwhile, I also received many comments from medical professionals who were also family members of patients at the same time. I learned that they were struggling with conflicting emotions of being a family member as well as a professional, and I realized the isolations of families, and persistent stigma attached to psychiatric disorders. The disclosure broadened my perspectives as a psychiatrist. Now, more than 30 years after becoming a doctor, I still question myself: 'what have I done?', 'Have I listened to the voices of patients and their families?' I still have persisted, as a psychiatrist, until today. Psychiatry is a field that can be neglected if you do not question its contradictions. I think this is also why 'patient-centered recovery' has been neglected, and, as a result, psychiatry has been left behind. I often hear people asking: 'how can we increase numbers of psychiatrists?' I did not become a psychiatrist because of my own experience. I believe that, by providing medical care that the patients and their families can appreciate, from those families, some younger members will desire to become psychiatrists ; that is the way psychiatry should be developed. For that purpose, I believe it is necessary more than anything to approach each case with great care, valuing the 'real voices' of patients and their families, and respecting their strengths.

摘要

我之前发表过一篇题为《关于“康复者”》的文章。它记录了一位精神分裂症家庭成员的实际情况和康复过程,且并未将我作为一名患者的康复经历描述为精神科医生的康复经历。发表时,主要目的是披露该家庭成员的真实姓名。自披露以来,我遇到了许多患者及其家属,了解到了他们那些我单纯通过咨询永远无法知晓的真实想法和长处,这彻底改变了我对他们的看法。与此同时,我也收到了许多同时身为患者家属的医学专业人士的评论。我了解到他们在身为家属和专业人士的矛盾情绪中挣扎,我意识到了患者家属的孤立无援,以及精神疾病所附着的持续污名。这次披露拓宽了我作为一名精神科医生的视野。如今,在成为医生30多年后,我仍在自问:“我做了什么?”“我倾听患者及其家属的声音了吗?”作为一名精神科医生,我仍在坚持,直至今日。精神医学是一个如果不质疑其矛盾之处就可能被忽视的领域。我认为这也是“以患者为中心的康复”被忽视的原因,结果精神医学就落后了。我经常听到人们问:“我们怎样才能增加精神科医生的数量?”我成为精神科医生并非出于自身经历。我相信,通过提供患者及其家属能够认可的医疗服务,从这些家庭中,一些年轻成员会渴望成为精神科医生;这才是精神医学应有的发展方式。为此,我认为比任何事情都更有必要极其谨慎地处理每一个案例,重视患者及其家属的“真实声音”,并尊重他们的长处。

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