Robertson Janet, Baines Susannah, Emerson Eric, Hatton Chris
Centre for Disability Research, Division of Health Research, Lancaster University, Lancaster, UK.
Centre for Disability Research and Policy, University of Sydney, Sydney, NSW, Australia.
J Appl Res Intellect Disabil. 2017 Jan;30(1):1-32. doi: 10.1111/jar.12228. Epub 2015 Nov 3.
Epilepsy is highly prevalent in people with intellectual disabilities and is associated with increased mortality and high healthcare usage. This systematic review summarizes research on service responses to people with intellectual disabilities and epilepsy.
Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO and Web of Science, email requests to researcher networks, and cross-citations. Information extracted from studies was reviewed narratively in relation to identified themes.
Thirty-five studies met the inclusion criteria. Overall study quality was low, with no RCTs or similarly robust intervention study designs. Access to specialists was inconsistent. The importance of proxies and the need for education regarding epilepsy for staff, carers and people with intellectual disabilities were highlighted.
There are no methodologically robust studies on service-related interventions for people with intellectual disabilities and epilepsy. Further research on improving service delivery is required to substantiate findings reported here.
癫痫在智力残疾人群中高度流行，且与死亡率增加和高医疗保健使用率相关。本系统评价总结了针对智力残疾和癫痫患者的服务应对措施的研究。
通过使用Medline、Cinahl、PsycINFO和Web of Science进行电子检索、向研究人员网络发送电子邮件请求以及交叉引用，确定了1990年以来发表的研究。从研究中提取的信息根据确定的主题进行了叙述性回顾。
35项研究符合纳入标准。总体研究质量较低，没有随机对照试验或类似强有力的干预研究设计。获得专科医生的服务不一致。强调了代理人的重要性以及对工作人员、护理人员和智力残疾者进行癫痫教育的必要性。
对于智力残疾和癫痫患者的服务相关干预措施，没有方法学上强有力的研究。需要进一步开展关于改善服务提供的研究，以证实此处报告的结果。
