• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

一项针对患有医学上无法解释症状的青少年及其父母的定性研究。第1部分:经历及其对日常生活的影响。

A qualitative study of adolescents with medically unexplained symptoms and their parents. Part 1: Experiences and impact on daily life.

作者信息

Moulin Virginie, Akre Christina, Rodondi Pierre-Yves, Ambresin Anne-Emmanuelle, Suris Joan-Carles

机构信息

Research Group on Adolescent Health (GRSA), Institute of Social and Preventive Medicine (IUMSP), Lausanne University Hospital, 1010 Lausanne, Switzerland.

Research and Teaching Group on Complementary Medicine, Institute of Social and Preventive Medicine (IUMSP), Lausanne University Hospital, 1010 Lausanne, Switzerland.

出版信息

J Adolesc. 2015 Dec;45:307-16. doi: 10.1016/j.adolescence.2015.10.010. Epub 2015 Oct 31.

DOI:10.1016/j.adolescence.2015.10.010
PMID:26530332
Abstract

Medically unexplained symptoms (MUS) are common among adolescents and are frequently encountered in primary care. Our aim was to explore how these adolescents and their parents experience the condition and its impact on their daily lives and to provide recommendations for health professionals. Using a qualitative approach, six focus groups and two individual interviews were conducted. These involved a total of ten adolescents with different types of MUS and sixteen parents. The respondents were recruited in a university hospital in Switzerland. A thematic analysis was conducted according to the Grounded Theory. The analysis of the data highlighted four core themes: disbelief, being different, concealing symptoms, and priority to adolescent's health. Transcending these themes was a core issue regarding the discrepancy between the strategies that adolescents and their parents use to cope with the symptoms. Health professionals should be made aware of the emotional needs of these patients and their families.

摘要

医学上无法解释的症状(MUS)在青少年中很常见,并且在初级保健中经常遇到。我们的目的是探讨这些青少年及其父母如何体验这种状况及其对他们日常生活的影响,并为卫生专业人员提供建议。采用定性方法,进行了六个焦点小组讨论和两次个人访谈。这些共涉及十名患有不同类型MUS的青少年和十六名家长。受访者是在瑞士的一家大学医院招募的。根据扎根理论进行了主题分析。数据分析突出了四个核心主题:怀疑、与众不同、隐瞒症状以及青少年健康优先。超越这些主题的是一个关于青少年及其父母应对症状所采用策略之间差异的核心问题。应该让卫生专业人员了解这些患者及其家庭的情感需求。

相似文献

1
A qualitative study of adolescents with medically unexplained symptoms and their parents. Part 1: Experiences and impact on daily life.一项针对患有医学上无法解释症状的青少年及其父母的定性研究。第1部分:经历及其对日常生活的影响。
J Adolesc. 2015 Dec;45:307-16. doi: 10.1016/j.adolescence.2015.10.010. Epub 2015 Oct 31.
2
A qualitative study of adolescents with medically unexplained symptoms and their parents. Part 2: How is healthcare perceived?一项关于有医学上无法解释症状的青少年及其父母的定性研究。第2部分:如何看待医疗保健?
J Adolesc. 2015 Dec;45:317-26. doi: 10.1016/j.adolescence.2015.10.003. Epub 2015 Oct 21.
3
Patients' experiences of living with medically unexplained symptoms (MUS): a qualitative study.患者对患有医学上无法解释的症状(MUS)的体验:一项定性研究。
BMC Fam Pract. 2018 Feb 2;19(1):23. doi: 10.1186/s12875-018-0709-6.
4
Nonepileptic seizures in the pediatric population: A qualitative study of patient and family experiences.儿科人群中的非癫痫性发作:对患者及其家庭经历的定性研究。
Epilepsy Behav. 2016 Jun;59:128-36. doi: 10.1016/j.yebeh.2016.03.029. Epub 2016 Apr 30.
5
'It is life threatening but I don't mind'. A qualitative study using photo elicitation interviews to explore adolescents' experiences of renal replacement therapies.“这危及生命,但我不在乎”。一项使用照片引发访谈的定性研究,以探索青少年的肾脏替代治疗经历。
Child Care Health Dev. 2013 Jul;39(4):602-12. doi: 10.1111/j.1365-2214.2012.01399.x. Epub 2012 Jun 8.
6
Symptom management for medically unexplained symptoms in primary care: a qualitative study.基层医疗中无法解释医学症状的症状管理:一项定性研究。
Br J Gen Pract. 2019 Apr;69(681):e254-e261. doi: 10.3399/bjgp19X701849. Epub 2019 Mar 11.
7
Social inclusion of persons with moderate head injuries: the points of view of adolescents with brain injuries, their parents and professionals.
Brain Inj. 2010;24(9):1087-97. doi: 10.3109/02699052.2010.494593.
8
Engaging patients with "medically unexplained symptoms" in psychological therapy: An integrative and transdiagnostic approach.在心理治疗中让患有“医学上无法解释的症状”的患者参与进来:一种综合的跨诊断方法。
Psychol Psychother. 2020 Jun;93(2):347-366. doi: 10.1111/papt.12213. Epub 2019 Jan 8.
9
To say or not to say: a qualitative study on the disclosure of their condition by human immunodeficiency virus-positive adolescents.说还是不说:一项关于人类免疫缺陷病毒阳性青少年病情披露情况的定性研究。
J Adolesc Health. 2009 Apr;44(4):356-62. doi: 10.1016/j.jadohealth.2008.08.004. Epub 2008 Oct 29.
10
Two worlds: Adolescents' strategies for managing life with a parent in hospice.两个世界:青少年照顾临终父母的生活应对策略
Palliat Support Care. 2016 Jun;14(3):177-86. doi: 10.1017/S1478951515000735. Epub 2015 Jul 1.

引用本文的文献

1
Unraveling the core symptoms of mental health in senior grade three students- a network analysis.剖析高三学生心理健康的核心症状——一项网络分析
Front Psychiatry. 2024 Apr 22;15:1364334. doi: 10.3389/fpsyt.2024.1364334. eCollection 2024.
2
Managing persistent physical symptoms when being social and active is the norm: a qualitative study among young people in Denmark.在丹麦,年轻人的常态是在社交和活跃时管理持续的身体症状:一项定性研究。
BMC Public Health. 2023 Oct 7;23(1):1949. doi: 10.1186/s12889-023-16910-2.
3
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments.
儿童和青少年慢性非癌症疼痛及其家庭对自身状况、疼痛服务和治疗的体验和理解的元人种学研究。
Cochrane Database Syst Rev. 2023 Oct 5;10(10):CD014873. doi: 10.1002/14651858.CD014873.pub2.
4
Longitudinal relations between autistic-like features and functional somatic symptoms in adolescence.青少年孤独症样特征与功能性躯体症状之间的纵向关系。
Autism. 2023 Aug;27(6):1690-1701. doi: 10.1177/13623613221143874. Epub 2023 Jan 1.
5
Bodily expression of psychological distress in adolescents: a qualitative study.青少年心理困扰的身体表达:一项定性研究。
Child Adolesc Psychiatry Ment Health. 2022 Jun 3;16(1):40. doi: 10.1186/s13034-022-00476-9.
6
Topical Review: Basic Psychological Needs in Adolescents with Chronic Pain-A Self-Determination Perspective.专题综述:慢性疼痛青少年的基本心理需求——自我决定视角
Pain Res Manag. 2019 Jan 6;2019:8629581. doi: 10.1155/2019/8629581. eCollection 2019.
7
Mindfulness-Based Stress Reduction for Adolescents with Functional Somatic Syndromes: A Pilot Cohort Study.针对功能性躯体综合征青少年的基于正念的减压疗法:一项前瞻性队列研究。
J Pediatr. 2017 Apr;183:184-190. doi: 10.1016/j.jpeds.2016.12.053. Epub 2017 Jan 12.